Go Shout Love Podcast Go Shout Love

Say hello to Arlee and Abel!👋you 

Arlee (7) and Abel (3) are from Gregory, Michigan where they enjoy spending lots of time outdoors!

Their life, like any other, is filled with moments of joy, laughter, and love. Yet, their journey is also marked by resilience, strength, and the unyielding bond that holds them together, especially in the face of challenges posed by a rare condition called Friedreich's Ataxia.
Throughout April, we’ll be shouting love for these two to help raise awareness and financial support for a reliable vehicle to transport them to and from appointments in Philadelphia.


We invite you to listen to a conversation with their parents, Becca and Myles.

Shout love for Elias!

Elias, lovingly known as Eli, is a seven-year-old kid from Bloomfield, Indiana who loves arts and crafts, playing outside, and sweet treats!

In today's episode we are talking with the parents to Eli and they are going to walk us through everything from Eli's personality, what he likes what he doesn’t like…and of course his medical journey from day one until now. 

Throughout March, we’ll be shouting love for Eli to raise awareness for his rare medical journey with 9p24.3 duplication, aspiration/dysphagia, and autism.

We have a special bonus episode this month on the go shout love podcast. One of our favorite things to do is interview either the kiddos themselves if possible, or their siblings. This month the sibling love between Brighton and sully is beyond endearing and we had to share it. We had a chance to talk with Sully about being Brighton’s brother. He is a funny and intelligent kid and we hope you enjoy listening as much as we enjoyed talking to him.

Brighton is a bubbly, cheerful and sweet two-year-old who loves all things Disney! Nestled in Mississippi, she shares her days with her loving parents, Josh and Kelly, and her older brother, Sully. Their family time is filled with warm embraces and cozy movie nights.
Brighton's journey took an unexpected turn within her first year when she was diagnosed with Leigh Syndrome, a rare mitochondrial disorder. Despite the hurdles she faces, Brighton remains a beacon of light in every room she enters.
In honor of Brighton's story, we present this month's "Beautifully Bright" t-shirt design. Throughout February, every purchase will contribute towards alleviating the financial strain of medical bills and acquiring necessary equipment for Brighton, expenses not covered by insurance.
Visit www.goshout.love to support Brighton through the purchase of a t-shirt, hat, hoodie, or other items.

Paisley was diagnosed with Neonatal Marfan’s syndrome shortly after birth, a condition occurring at a frequency of 2 to 3 people per 10,000.Paisley’s medical story began with a dramatic entrance, marked by a c-section due to her fluctuating heart rate. The discovery of a heart murmur, turned-in feet, and unusually long fingers prompted a swift transfer to a different hospital, where the diagnosis unfolded. Neonatal Marfan’s syndrome, a rare connective tissue disorder, became the new reality for Marissa, Chris, and their newborn daughter.

Amidst the shock and uncertainty, the couple navigated the complex world of rare medical journeys, seeking answers and understanding.

Today we share the story of a four-year-old girl from Mississippi named Colbi. Colbi’s parents, Megan and Joseph, will be joining us to shed light on their daughter's extraordinary medical journey, battling Combined D2-L2 HGA, and the unique challenges of being just the second documented case in the United States.