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OffScrip Media, LLC
RARING
Welcome to RARING, the voice of the rare disease community and a no-BS forum for patients and their families, rare disease patient organizations, and medical professionals. If you live with a rare disease or love someone who does, RARING is the podcast for you, by you, and with you every day. Tune in to hear leading experts discussing next-generation diagnostics and treatments. Learn from passionate nonprofit leaders talking about their highs and lows fighting for their communities. And laugh and cry as real patients and caregivers like you share authentic and inspirational...
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Ratings & Reviews
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5.0 stars from 40 ratings
Wonderful podcast.
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“I wish I would have found this podcast sooner. Having a rare disease myself, It has been so encouraging to hear others stories who are living with a rare disease. I would highly recommend this podcast.”
lKaup via Apple Podcasts ·
United States of America ·
09/14/22
So inspiring and informative
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“Matthew Zachary is HILARIOUS — how does he tackle such heavy topics so gracefully and adding a spark of joy and fun? It’s magic!
I feel warm and fuzzy after listening to each podcast — the voices and perspectives shared are SO INSPIRING.
I never miss an episode. This is one of my top 3...”Read full review »
DebbieDoesDC via Apple Podcasts ·
United States of America ·
03/04/21
Excellent
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“NORD is THE most helpful organization out there for resources for people with rare diseases. I’m thrilled about this podcast.”
narcolepsygirl via Apple Podcasts ·
United States of America ·
09/10/20
Recent Episodes
Published 06/22/22
Today on NORDpod, Andrew MacDowell stands in for Matthew Zachary, and he welcomes Dr. Kathleen Donohue, Director of the Division of Rare Diseases and Medical Genetics, at the FDA’s Office of New Drugs. Over 350 million people worldwide have a rare disease, yet only 10% of rare diseases have an...
Published 06/22/22
You're in for a treat on today's episode of NORDpod as I welcome chronic illness advocate Sarah Pennington to the show. Since the age of 11, Sarah has been managing a condition known as Trichotillomania, a disorder that involves recurrent, irresistible urges to pull out body hair. An estimated...
Published 06/08/22
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