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OffScrip Media, LLC
Welcome to NORDpod™, the voice of rare disease and the official podcast of the National Organization for Rare Disorders (NORD®). We are one community dedicated to those impacted by rare disease, and, together, our voices are louder.
Listen now
Ratings & Reviews
5.0 stars from 32 ratings
So inspiring and informative
Matthew Zachary is HILARIOUS — how does he tackle such heavy topics so gracefully and adding a spark of joy and fun? It’s magic! I feel warm and fuzzy after listening to each podcast — the voices and perspectives shared are SO INSPIRING. I never miss an episode. This is one of my top 3...Read full review »
DebbieDoesDC via Apple Podcasts · United States of America · 03/04/21
NORD is THE most helpful organization out there for resources for people with rare diseases. I’m thrilled about this podcast.
narcolepsygirl via Apple Podcasts · United States of America · 09/10/20
Great episode today!! Really enjoyed listening to it!! Looking forward to the next one!!
Ndcn126 via Apple Podcasts · United States of America · 09/09/20
Recent Episodes
Today on NORDpod, we welcome back Leslie Nordstrom, Director of Marketing and communications at NORD. As returning champion to the show, she’s back to get real about the rare disease community with reflection on the past 18 months. The pandemic’s impact cannot be understated. Millions of lives...
Published 06/09/21
On the show today, Matthew Zachary welcomes Joann D'Angelo, a Parry-Romberg syndrome patient and the Founder of The Parry-Romberg Syndrome Foundation. PRS, as it is known in acronym land, is an extremely rare facial disfigurement that impacts the bone, muscle, and dental only on one side of the...
Published 05/26/21
On the show today: Jeff Goldstein, President, and Founder of the Lung Transplant Foundation, a nonprofit organization that provides education and emotional support for transplant recipients and their caregivers and raises money for lung transplant research. Jeff was diagnosed in his mid-40s in...
Published 05/12/21
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