The MiaThrives Podcast MiaThrives
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- Society & Culture
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Join Melissa and Emily from MiaThrives as they discuss thriving with EB, Butterfly Children, our amazing community and everything in between! We are so excited to connect with you!
Support our podcast at https://www.patreon.com/miathrives
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Not Letting EB Dictate Her Life
Through self confidence and self acceptance Noelle didn't let EB stand in her way of attending an exchange program half way around the world. She is passionate about dance, her double major in University and spending time with her friends in the EB community. After tuning into her episode don't forget to head over to our Facebook forum where the conversation continues!
Instagram- https://www.instagram.com/noelle_hermes/
TikTok- https://www.tiktok.com/@noellehermes?refer=embed
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PinkPoshFox
Sarah uses her EB as a motivator to propel her forward rather than hold her back. Creating EB-friendly products grew into her passion and business creating safe, vegan, ethically sourced, handmade skin care products.
www.pinkposhfox.com
IG: https://www.instagram.com/pinkposhfox/
FB: https://www.facebook.com/PinkPoshFox/
TikTok: https://www.tiktok.com/@pinkposhfox
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"I have EB, but EB doesn't have me"
Amy is a UK-based mama, wife, advocate, and pilates enthusiast with an extremely positive outlook on life. Tune in to this episode where she shares her journey with pregnancy, breastfeeding, and life post-partum. Amy chooses to focus on the aspects of motherhood she can do like reading to her son daily instead of dwelling on some physical aspects that are out of her control.
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"He was meant to be here, even if he wasn't expected to be here."
Moe spent the first two years of his life in the hospital because they didn't expect him to make it, not only did he make it but he is Thriving! He has a unique career giving back to the community and has evolved into being a social butterfly.
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"She was dancing in the womb"
Vanessa has a deep love for music that has helped her cope with dressing changes and the pains of EB. She has merged that love of music with her other passions to create her dream career, despite people telling her it wasn't possible she pushed on to achieve her dreams.
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Not just surviving but Thriving!
When Armando first went into foster care adoption wasn't on the table since they didn't know what his life was going to look like with EB and if he would even survive, he is not only surviving but THRIVING with a very full life including a career, family (families), girlfriend and adorable dog! Tune in to hear his amazing journey and unique story.
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Send in a voice message: https://podcasters.spotify.com/pod/show/miathrives/message
Customer Reviews
EB mom and grandma
As a woman with EB , three kids with EB and one granddaughter with EB this podcast gives a sense of belonging and community as back in the day. I didn’t know anybody with a B only cousins.
Great podcast giving insight into EB patients
As a woman with EB myself I love this podcast.
Love this
This a great platform and resource for those not only in the EB community but society at large. I personally do not suffer from EB but support the community and awareness campaigns. Will be a loyal listener as you go forward.
GLowe
Co Founder
Theramu