Unheard of Danielle Perro and Magda Marečková

In this teaser episode, we are joined by Margarida Sardo who shares with us her endometriosis journey, and reveals questions that she's had and continues to have about the condition.
If you liked today's episode, please like, share and subscribe!
This podcast was generously brought to you by the Nuffield Department of Women's and Reproductive Health, at the University of Oxford.
We would like to thank Margarida Sardo, a Science Communication Researcher at UWE Bristol, for sharing both her experience of living with endometriosis, as well as her science communication expertise throughout the podcast.
Contact Details:
Margarida Sardo: margaridasardo@me.com
Twitter: @MargaridaSardo
Support Resources: 
Local (UK) Endometriosis Support Groups
Mental Health Support
Want to support endometriosis research and those with endometriosis? Please consider donating to Endometriosis UK.

In this episode, we explore what endometriosis means to different people and what we currently know about what causes the disease. From the perspective of someone living with endometriosis, Margarida Sardo shared with us how endometriosis has shaped who she is, and why knowing what causes endometriosis would have been very important to her throughout her journey with endometriosis. We delve deeper into some of the main theories of what we currently think causes endometriosis with Dr Martin Hirsch, consultant gynaecologist and endometriosis specialist surgeon at Oxford University Hospitals, and Dr Nicola Tempest, and endometriosis researchers and academic clinical lecturer at the University of Liverpool. We also get insight into what endometriosis looks like inside the body from a surgeon's perspective, and how researching endometriosis can help us better understand the disease itself, its causes and help us to diagnose and treat it more effectively, in the future.
If you liked today's episode, please like, share and subscribe!
This podcast was generously brought to you by the Nuffield Department of Women's and Reproductive Health, at the University of Oxford.
We would like to thank Dr Nicola Tempest and Dr Martin Hirsch for sharing their research, clinical and surgical expertise in the field of endometriosis. Finally, thank you to Margarida Sardo for sharing with us what endometriosis means to her, as well as her science communication expertise throughout the podcast. 
Contact Details:
Dr Nicola Tempest: (Twitter) @Hapangama_lab
Dr Martin Hirsch: (Twitter) @martinhirsch (Instagram) @endometriosis.surgeon.uk
Margarida Sardo: (Twitter) @MargaridaSardo (Email) margaridasardo@me.com
Additional Resources:
Learn more about the theories discussed throughout the episode.
Want to support endometriosis research aiming to better understand the underlying cause? Please consider donating to Wellbeing of Women. 

In this episode, we are joined by Lydia Coxon, Post-Doctoral Researcher at the University of Oxford's Pain in Women group, and PhD Candidate Natasha Orr, of the University of British Columbia and UBC Endometriosis and Pelvic Pain Laboratory. In conversation, we learn more about what causes pain in endometriosis, how pain is studied, and some of the incredible work being done to the understand the highly stigmatised pains experienced by those with the condition. We are once again joined by Margarida Sardo, who shares with us her experience of living with endometriosis-associated pain, and gives invaluable insight into the variability and impact that this pain can have on the lives of people living with it.
If you liked today's episode, please like, share and subscribe!
This podcast was generously brought to you by the Nuffield Department of Women's and Reproductive Health, at the University of Oxford.
We would like to thank Lydia Coxon and Natasha Orr for sharing their expertise in the field of endometriosis-associated pain research. Finally, thank you to Margarida Sardo for sharing with us her experience of living with endometriosis-associated pain, as well as her science communication expertise throughout the podcast.
 
Contact Details:
Lydia Coxon: (twitter) @LydiaCoxon
Natasha Orr: (twitter) @NatashaLeighOrr
Margarida Sardo: (email) margaridasardo@me.com / (twitter) @MargaridaSardo
Additional Resources:
Learn more about sexual pain in endometriosis.
Want to support a charity which support people living with chronic pain across the United Kingdom? Please consider donating to Pain UK.

In this episode, we are joined by Dr Arne Vanhie, Fertility Specialist at the Leuven University Hospital, and Dr Mathew Leonardi, Gynaecologic Surgeon and Sonologist at McMaster University & PhD candidate at the University of Sydney. Together we discuss what factors contribute to the diagnostic delay seen in endometriosis, which in the UK is currently on average 7.5 years, our focus on laparoscopy as the only definitive way to diagnose it, and what options there are for diagnosis, including: laparoscopy, imaging and future non-invasive options. We also hear from Margarida Sardo about what it meant to her to obtain her endometriosis diagnosis, and how her journey with the condition as developed since.
If you liked today's episode, please like, share and subscribe!
This podcast was generously brought to you by the Nuffield Department of Women's and Reproductive Health, at the University of Oxford.
We would like to thank Dr Arne Vanhie and Dr Mathew Leonardi for sharing their expertise in the field of endometriosis diagnosis and management. Finally, thank you Margarida Sardo for sharing with us her experience of receiving an endometriosis diagnosis, as well as her science communication expertise throughout the podcast.
Contact Details: 
Dr Arne Vanhie: (email) endometriose@uzleuven.be
Dr Mathew Leonardi: (twitter) @MathewLeonardi
Margarida Sardo: (email) margaridasardo@me.com / (twitter): @MargaridaSardo
Additional Resources:
Endometriosis UK: getting diagnosed
Interested in supporting a charity that support the specialist training of gynaecologists, and develops reproductive health-related policy? Please consider donating to the Royal College of Obstetrics and Gynaecologists.
 

In this episode, we are joined by Nikita Aashi Chadha, Writer & Lead Facilitator for Cysters, Dr Cara E. Jones, Assistant Professor of Women's & Gender Studies at California State University at Sacramento, and Beth McCowen, Deputy director of Endo Support United. Together we discuss how various aspects of our identity (i.e. race, gender, sexuality, age) may further contribute to the delay in receiving a diagnosis, and the quality of care one receives along their endometriosis journey. 
If you liked today’s episode, please like, share and subscribe! 
This podcast was generously brought to you by the Nuffield Department of Women’s and Reproductive Health, at the University of Oxford. 
We would like to thank Nikita Aaashi Chada, Cara E. Jones and Beth McCowen for sharing their experiences of endometriosis with us, but also for shedding light on the crucial importance of understanding endometriosis and communicating about it in an inclusive and intersectional manner. 
Contact Details:  
Nikita Aashi Chadha: (instagram): @nikkaayyy_c  
Dr Cara E. Jones: (twitter): @DrCaraEJones, (email): cara.jones@csus.edu
Beth McCowen: (twitter) @EndoSpprtUnited, (instagram): @bethmccoweb, @endo.support.united.lt 
 
Additional Resources:  
To get in touch with, or to work directly with Cysters please contact us via smile@cysters.org 
We are currently working on changing the narrative of the chronically ill space by publishing our own powerlist of 100 POC Chronic Illness Advocates. We are urging people to self-nominate in an attempt to dispel imposter syndrome: http://cysters.org/thepowerlist/ 
If you'd like to participate in research that is looking at intersectional experiences of Endometriosis, please visit the link via Jodie Hughes PhD @ Endometriosis South Coast: https://roehamptonuniversity.onlinesurveys.ac.uk/a-study-on-the-effects-of-location-ethnicity-and-care-app 
To read more about Endometriosis and Intersectionality, please refer to Nikita's Discover Society Article, or follow us on Instagram: @nikkaayyy_c @cystersgroup @neelamheeraspeaks 
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Cara E. Jones articles:
Queering gendered disabilities 

The Pain of Endo Existence: Toward a Feminist Disability Studies Reading of Endometriosis 
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Endo Support United Ltd resources

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If you're interested in donating to the work done my Endo Support United Ltd and Cysters, please consider getting in touch: Endo Support United Ltd, Cysters. 

Summary 
In this episode, we are joined by Dr Vimee Bindra, consultant endometriosis excisional surgeon in Hyderabad, India and Dr Emma Evans, clinical psychologist at Oxford University Hospitals NHS Trust, UK. Together we explore how surgery, psychological interventions, and other more holistic and personalised options can help manage endometriosis associated symptoms. We also hear from Margarida Sardo about her experience with managing her endometriosis symptoms and what options worked for her along her endometriosis journey. 
If you liked today’s episode, please like, share and subscribe! 
This podcast was generously brought to you by the Nuffield Department of Women’s and Reproductive Health, at the University of Oxford. 
We would like to thank Dr Vimee Bindra and Dr Emma Evans for sharing their expertise in the field of surgical and psychological management of endometriosis symptoms. Finally, thank you to Margarida Sardo for sharing with us her journey to finding the treatment that works for her endometriosis symptoms, as well as her science communication expertise throughout the podcast. 
Contact Details:  
Dr Vimee Bindra: (email): vimee.bindra@gmail.com / (twitter): @VimeeBindra / (instagram): @endometriosissurgeon_india / (facebook): https://www.facebook.com/endometriosisspecialist / (linkedin): https://www.linkedin.com/in/dr-vimee-bindra-basu-7514765b/  
Dr Emma Evans: (twitter): @DrEmmaEvans 
Margarida Sardo: (email) margaridasardo@me.com / (twitter): @MargaridaSardo 
 
Additional Resources:  
Endometriosis UK: treatment  
 
Want to support the work of charities that provide mental health support and advice? Consider donating to Mind.