Episode 5 features Rob Long, Executive Director, Uplifting Athletes. Rob tells his inspiring story of being a D1 athlete and NFL draft prospect to persevering through a rare form of brain cancer. Tune in to learn more about Rob's experience and how Uplifting Athletes is leveraging the platform of...

In this episode, Lesa shares how her daughter's diagnosis of Krabbe disease and tragic passing launched her into a career of advocacy, ultimately leading to legislative action in Pennsylvania around newborn screening panels and access for patients.

In this episode hear Marie's inspiring story living with a rare disease, her motivation to help others facing rare conditions through her work with the Pennsylvania Rare Disease Advisory Council (PARDAC) and how the Conley Cushing's Disease Fund is contributing to promoting awareness.