Episodes
Published 10/23/15
Bruce Kramer and Matthew of Mind/Body Solutions speak at an event at the University of St. Thomas. They talk about how all of our bodies are breaking down. They say it's important to embrace that reality rather than fight it.
Published 10/16/15
Published 10/16/15
Bruce Kramer responds to a series of articles in the New York Times which argue that suicide is a logical choice at the end of life. He also talks about the decision to surgically-install a device which helps him breathe and whether that decision was a way of denying his inevitable death.
Published 10/09/15
Bruce Kramer responds to a series of articles in the New York Times which argue that suicide is a logical choice at the end of life. He also talks about the decision to surgically-install a device which helps him breathe and whether that decision was a way of denying his inevitable death.
Published 10/09/15
In the fall of 2013, the losses of ALS - or paper cuts, as Bruce called them - kept coming.
Published 10/02/15
Published 10/02/15
Two recent photographs of Bruce Kramer illustrate his frame of mind. In one, he didn't recognize himself at first and then saw what he calls the "ALS look." In another you see his pure joy at becoming a grandfather for the first time.
Published 09/25/15
Published 09/25/15
Bruce Kramer faced some important decisions as his ALS progressed. He contemplated whether he should get a diaphragmatic pacing system which would help him breathe. And he wondered about the value of checking things off a "bucket list."
Published 09/18/15
Published 09/18/15
Bruce Kramer believed that researchers need to rethink the way they test new drugs on ALS patients like him. He argued that the double-blind testing model doesn't work for a devastating fatal illness like ALS. In this episode of Living While Dying, we also hear from a bio-ethicist about the decision to deny some patients access to an experimental drug.
Published 09/11/15
Published 09/11/15
Bruce Kramer helps medical students understand the patient's point of view. He has advice about how doctors should deliver bad news.
Published 09/04/15
Published 09/04/15
After being diagnosed with ALS, Bruce Kramer learned to appreciate the value of yoga. He found it to be a freeing and emotional experience. It helped Bruce reconnect with parts of his body that were affected by the disease.
Published 08/28/15
Published 08/28/15
Bruce Kramer reflects on how having ALS has affected his belief in God. He says it has not shaken his faith. He thinks ALS proves that there is something greater than us.
Published 08/21/15
Published 08/21/15
Bruce Kramer participated in a drug trial to determine if Dexpramipexole could slow the progression of ALS. Kramer felt the drug was working for him and was frustrated when the trial was terminated.
Published 08/14/15
Two years since being diagnosed with ALS, Bruce Kramer re-evaluates his priorities. As Christmas approaches, he has the time and solitude to appreciate the season more than ever.
Published 08/07/15
People who've been hit hard by a very serious health challenge wrestle with a lot of questions right after their diagnosis. One of them is, "can I, should I, keep working?" Bruce Kramer talks about his battle with this question.
Published 07/31/15
Bruce Kramer talks about participating in a drug trial, and how it led him to question the bureaucracy of the medical care system.
Published 07/24/15
Bruce Kramer describes how he adjusts mentally to the changes in his physical capabilities brought on by the progression of ALS. He likens it to a snake shedding skins.
Published 07/17/15
Published 07/17/15