Inspiring, Gut-Wrenching & SO VERY IMPORTANT
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“Inspiring & Gut-Wrenching … this podcast is so very important for people to hear and to understand what a small, nano-rare (less than 30 people worldwide) group faces and deals with on a daily basis …
Susanna’s story and the journey Luke discusses along with Wendy Chung are a story that needs to be heard!!
Take the time to listen … it will be well-worth it!!”
WadeOCpaddler via Apple Podcasts ·
United States of America ·
05/25/22
More reviews of Patient Empowerment Program
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“Very exciting news”
papanormie via Apple Podcasts ·
United States of America ·
05/26/22
“It must have been devastating to have a kid with a genetic disease mutation that is the only the single one in the whole world. I hope the army of team who works behind the scene can help Susanna out. Thanks for reminding me of how meaningful it is to keep doing good science”
LouisaLeung via Apple Podcasts ·
United States of America ·
05/26/22
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“You can truly learn what a rare mutation in a gene means to someone’s life from this great podcast. The story is very touching.”
patientfirstfocus via Apple Podcasts ·
United States of America ·
05/25/22
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