Still not impressed
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“I’m confused. If you’re saying that at the crux of the controversy of chronic Lyme is “values” regarding the ethics of long-term antibiotic treatment, then you’re going to have to take this up with the American Academy of Dermatology. Long-term use of the same drug, doxycycline (and at the same dosage), is recommended for teenage cystic acne. In fact, according to guidelines, the minimum treatment length for doxy starts at 3 months and the general rule of thumb is 6 months. So if we are talking values wouldn’t it be more fair to focus the victim-shaming on little Billy next door for his vanity and just wanting to be liked by girls, instead of the truly sick, suicidal and marginalized? Although I was encouraged to hear that the topic of Lyme Disease has been keeping you up at night as it does for so many others, I would like to suggest you ask the hard-hitting questions instead of going around and around on the same tired talking points that the majority of journalists churn out. Here are just a few ideas off the top of my head if you need any:
Why is the focus put on the “values” of desperate patients and the doctors who treat them, and not the “values” of the medical community at large who gaslight and refuse to treat very sick individuals with ANY long term treatment (let alone long-term antibiotics), or the insurance companies who refuse to cover the costs of IV’s, supplements, and immune-boosting drugs?
The vast majority of LLMD’s no longer recommend IV antibiotics due to the associated risks, so why is it still being used as a major talking point for the case against LLMD’s?
Why has the CDC invested so little money on Lyme Disease research when it’s the biggest vector-borne illness in the United States? Why do we still not have conclusive answers for the most basic of questions regarding the disease?
Why after 6 episodes have you still not interviewed a single reputable Lyme Literate doctor? Especially before you make sweeping claims as to the efficacy of testing, diagnosing and treatment? Dr. Richard Horowitz wrote a book that most patients consider the go-to book on how to treat chronic Lyme disease. He has treated around the ballpark of 30,000 patients. Are you willing to let him weigh in on the matter?
Why is it that Labcorp’s and Quest’s western blot only tests for Borrelia Burgdorferi, when in fact it is dozens of species of borrelia that cause Lyme Disease and its debilitating symptoms?
Are you willing to interview any people who work at the specialty labs that test for Lyme? Is it true that Igenex could be more accurate in its testing because it cross-reacts with the more strains of Lyme borrelia (as stated on its website)? Could this cross-reaction with more strains be a reason specialty labs are more “sensitive” and produce more positive or varying results? If not, what are the criteria for positive results at each lab?
Why is DNA Connexions, a popular lab that claims to culture the bacteria from patients’ urine samples, repeatedly unable to get FDA approval? Why won’t the medical community at large accept results from this lab? Have there been ANY investigations by anyone to see if this lab is legitimate? If this was a quack lab with fraudulent practices how could we not know conclusively by now?
If the bacteria are so difficult to find because they’ve burrowed into joints and organs, can autopsies of those who had been treated for Lyme Disease be performed?
And last but not least... why can I get 6 months of doxy to treat my acne, but I can’t get it to save my life?”
Nigel2020 via Apple Podcasts ·
United States of America ·
09/28/19
More reviews of Patient Zero
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“I wasn’t too sure about this podcast at first but once I started listening I got hooked. The podcast shares great information and a historical look at Lymes Disease.”
Desynk via Apple Podcasts ·
Canada ·
09/08/19
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“Excellent podcast! Really interesting, entertaining, and fantastic narrator. Can’t wait to continue listening.”
MrDroftus via Apple Podcasts ·
United States of America ·
08/30/19
“Creepy, gross, disturbing and an extremely thorough examination of Lyme. Nice Pod”
worldwideblockchain via Apple Podcasts ·
United States of America ·
10/04/19
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