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Hello and welcome to the Project CASK Podcast! This is a place for the CASK community to gather to share our stories, deepen our connections, learn from each other and hopefully find laughter and joy as we travel this rare disease journey together. Reach us at [email protected] with your ideas for upcoming episodes! Can’t wait to hear from you 🦄🦁💕🧬✨ #caskgene #caskgenemutation #kickingcask #projectcask #raredisease #ultrararedisease
More Episodes
Join in this collective community effort and honor our fathers and father figures, who support us and our families on this CASK journey.
Published 06/16/24
Our special guest today is Stefanie Trask, mama to the absolutely adorable Ellie and the sweetest big brother, Bo. Lately, we’ve had many questions from newly diagnosed parents about intensive therapies, and we’ve seen an expansion in the types of therapies and the places our CASK families are...
Published 05/21/24