Description
Today our special guest parent is Christine Phillips, mama to Emmy and Andy…
Being such a small community, it’s probably the case that our children are all unique. But in that sea of originality, little Emmy is a truly rare gem, having been born with both spina bifida and a cask gene mutation.
In this episode, we cover quite a few topics. From dual diagnosis, to recognizing unusual seizure presentation, g-tubes, keto and a blended diet, ableism, and creating an environment rich for our children's unique needs!
We are incredibly thankful to have Christine share with all of us; she is a true warrior mama!
You can follow Christine and Emmy's story on Instagram at @emeliasstory
Join in this collective community effort and honor our fathers and father figures, who support us and our families on this CASK journey.
Published 06/16/24
Our special guest today is Stefanie Trask, mama to the absolutely adorable Ellie and the sweetest big brother, Bo.
Lately, we’ve had many questions from newly diagnosed parents about intensive therapies, and we’ve seen an expansion in the types of therapies and the places our CASK families are...
Published 05/21/24