This week's episode is a special one!! I'm sure so many of you have seen the news of the change in name of the FMR1 gene responsible for Fragile X Syndrome! This has been a long time coming! I'm looking forward to how this positive step forward creates a more appropriate and factual description of Fragile X Syndrome and moving away from the negative connotations. In this episode, I talk about the history of the FMR1 gene, why this is an important step forward as a female full-mutation...

Surprise!!! On this weeks episode of Talk FX, I had the pleasure of chatting with Author, Blogger, and Mother of 4 children, Kate Swenson! Kate was recently on the Today Show promoting her new book and sharing a snippet of her and her son Cooper’s story! Since then, her new book has become a Best Seller on Amazon!! When she agreed to be a guest on Talk FX, I about jumped out of my chair! It was such a pleasure to welcome Kate on the podcast and talk about her journey in writing Forever Boy,...

It's Autism Awareness Month!! On this week's episode of Talk FX, we not only discuss the mission of Autism Awareness Month, but we also break down what Autism is and how individuals with Fragile X Syndrome are often co-diagnosed with Autism. I also share a bit of my 13-year-old cousin's journey of being diagnosed with both Autism and full-mutation Fragile X. You don't want to miss this episode!

On this weeks episode of Talk FX, I’m joined with Sara Knudson, a passionate mom of three children, with two of the three being affected by Fragile X Syndrome. Sara shares about her children’s diagnosis stories, the struggles, the joys, and the amazing resources and support they have available in their home state of Illinois! It was such a pleasure to have Sara on Talk FX! You don’t want to miss this episode!

Prioritizing self-care is not always simple! Whether you're a mom of a fragile x child, self-advocate, or full-mutation carrier, it can be challenging to find time for yourself to be alone or do what helps you to reset or re-energize! In this week's episode of Talk FX, we discuss not only the importance of prioritizing self-care in your life, but also the different forms of self-care to consider implementing into your daily, weekly, or monthly life. 

On Tuesday, March 1st the National Fragile X Foundation will be having their annual Advocacy Day virtually! This is an opportunity for families affected by Fragile X Syndrome, caregivers, self-advocates, doctors, and researchers to meet with their members of congress and be an advocate for fragile x. Whether that's sharing your fragile x diagnosis story or advocating for continued funding in research! It's an empowering opportunity to be a part of the fragile x community! On today's episode...

If you're reading the title of this episode and you're thinking "this doesn't pertain to us yet, think again!" In this week's episode of Talk FX, we discuss what it looks like to prepare our children for employment. We understand that there is a pretty big spectrum of families in the Fragile X community with children that have either had employment experience, volunteer experience only, or maybe even hasn't had a job before! Well, we are not only going to discuss what the employment process...

On this weeks episode of Talk FX, it was so special to welcome my Aunt Michelle and Uncle Jeff, and my cousin Nathan for a raw family conversation about Fragile X Syndrome. We discussed the education system, advocacy, fragile x experts, supports and much more. I’m so thankful for my family and their willingness to join me on Talk FX. We hope this episode brings you encouragement and hope for your family.

Joining us for our second episode of 2022 is President & Co Founder of FRAXA Research Foundation; Katie Clapp! She shares with us the exciting research proposals coming up for FRAXA to support, the 2nd annual World Fragile X Day on July 22nd, 2022 and how you can be involved, and much more!

What better way to start off the new year then kicking off Season 5 of Talk FX with a very personal episode! I'm excited to have my husband Moe on with me for the first time ever! We talk about my diagnosis story, how fragile x has affected our relationship, the hardships, and more. In the countless episodes of Talk FX that I've done, I have had yet to get more personal or vulnerable. However, last year I was so encouraged and inspired by the many families that boldly and courageously shared...

Cheers to our very last episode of 2021!! I've had many conversations with Fragile X families in the last few months regarding a topic that is so important. I've also seen so many families reaching out for support on this topic as well. That is on preparing our children for doctor's appointments! There are so many factors that come into play in preparing our children for doctor's appointments. I hope that the encouragement we offer is helpful to our fragile x community in supporting your...

In this episode of Talk FX, we dive deeper into the important topic of transitioning from grade school to adulthood for our FXer's! Where do I start? What questions do I ask? What services are available in my state? Whether you're a newly diagnosed family, self advocate, full-mutation carrier, or you just stumbled upon this podcast, you don't want to miss this episode!

On Tuesday, November 30th it’s National Fragile X Foundation’s Giving Tuesday! We discuss how this annual day of giving is an amazing opportunity to make a difference in the lives of families affected by Fragile X Syndrome. Tune into this weeks episode to learn how you can be apart of Giving Tuesday!

On this weeks episode of Talk FX, we focus on one of the most impactful aspects of Fragile X Syndrome, and that’s Advocacy! With Advocacy Day a few months away, it’s important to start thinking about how you can participate! But that’s not all, we can be apart of advocacy in other ways as well that make a difference in the lives of individuals with FX. Tune in to find out what those are!

What does the transition from grade school to adulthood look like for your FX child? In this weeks episode, we talk about what challenges are involved in this particular transition in an individual with FX’s life, and the supports that are available! It is so vital to provide these resources, and ensure the best transition possible for our children! This is a topic that can’t be discussed and shared on enough!

In this weeks episode of Talk FX, we are joined with a very special guest, Dr. Randi Hagerman! She is a distinguished professor of Pediatrics at the University of CA Davis Medical Center, and is the director of the Fragile X Research and Treatment Center at the MIND Institute. It doesn’t end there! Randi Hagerman has made, and continues to make a significant impact in the fragile x community because of her efforts! You don’t want to miss this episode!

We’re excited to be back with a new episode of Talk FX, after taking a pause. What better way to kick things off then to have special guest Katie Clapp, Founder of FRAXA Research Foundation on with us to share about the launch of World Fragile X Day. She shares how this idea came about, how others can get involved, and how other organizations across the nation have joined World Fragile X Day. You don’t want to miss this episode!

In this weeks episode, we chat with our Instagram Giveaway winner Brandy! Her and her husband have two boys (ages 3 & 6) with Fragile X. She shares how they navigate life, how much support they’ve found in their tight nit community, and talk about what being a Fragile X Parent is all about - the joys and the struggles!

We’re back with another episode of Talk FX! What better way to kick things off after a short break from our weekly episodes then to have Katie Clapp, President & Co-Founder of FRAXA Research Foundation join us! She shares with us the history of FRAXA, the motivation behind starting the foundation, how they choose Fragile X related research to fund, and much more!

It’s a new year, that means another Advocacy Day is upon us! We are excited about what 2021 holds for the Fragile X Community, and gaining more awareness and support for FX! Even though this year’s Advocacy Day will be virtual, we know it’s going to be just as impactful of a day, if not more! So on today’s episode, we go into details on what this year’s Advocacy Day is going to look like, why it’s so important to participate, and more!

In this weeks episode we’re joined with Debbie! She has a 13 year old son with Full-Mutation Fragile X and she shares with us her experiences with aggressive behavior & discipline as a Mother, and as a Paraeducator! We talk about the importance of patience and communication! As well as helpful resources like PEC’s if your child is non verbal. We also talk about physical approaches to relieving your FX Child of anxiety or hyperarousal. Such as a weighted blanket, a swing, or beanbag chair!...

In our first episode of 2021, I’m joined with Talk FX Podcast Team Member and FX Mom Kelsie! We wanted to start off the new year by talking about what Fragile X has taught us! We also talk about how to make the most of socializing our kids during this Pandemic, as well as successful and non-successful medications for things like anxiety and sleep aid! You don’t want to miss this encouraging episode!

In our last episode of Talk FX of 2020, we go over our top 5 most listened to episodes!! You don’t want to miss it! Thank you to each and every one of our listeners for your support since starting Talk FX in May of this year! This podcast wouldn’t be possible if it weren’t for you tuning in every week! We hope you’ve been encouraged by this podcast, and we look forward to continuing to encourage, and create more awareness of Fragile X in 2021! Happy Holidays and we’ll see you in the New Year!!

It’s our 20th episode of Talk FX and we’re joined with Amy, Mom to 10 Year old son Jaxon with Fragile X Syndrome! We talk about his diagnosis story, education, potty training, milestones, bullying, and more!! You don’t want to miss this episode!

In this weeks episode of Talk FX, we wanted to discuss a current topic that we’ve been seeing a lot of Fragile X Families needing some support with, and that’s navigating distance learning! Is your child currently participating in distance learning? Or are they doing half distance learning and half in person? Tune into this weeks episode as we chat with Debbie, Mom of Skyler with full-mutation FX! She shares with us what her son’s journey with distance learning has looked like, some...