This content is made possible through the generous support of listeners like you. Click here to make a donation. In the debut episode of The Parkinson's Podcast: Unfiltered, hosts Heather Kennedy and Kat Hill explore the often overlooked stigma surrounding Parkinson's. Through personal stories and insights, they challenge misconceptions and explore how shifting narratives can empower minds and reshape perceptions. Tune in for a fresh perspective on living with Parkinson's.  Click here to...

This content is made possible through the generous support of listeners like you. Click here to make a donation. In this episode, panelists discuss ways that Parkinson’s has affected their abilities and how they navigate these changes. As always, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truths and share their journeys with all of us. Click here to subscribe for our podcast and video content on YouTube.  Click here to learn more about the Davis Phinney...

This content is made possible through generous donations made by our listeners.  In this episode, Dr. Karunapuzha discusses advanced Parkinson’s with Davis Phinney Foundation Executive Director Polly Dawkins. Dr. Karunapuzha covers multiple interpretations of what “advanced Parkinson’s” means, what symptoms are associated with advanced Parkinson’s, and possible ways to manage those symptoms. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible through generous donations made by our listeners.  In this episode, discover the story behind Izzy Mokotoff and Alexis Chan's innovative pen for people living with Parkinson's: SteadyScrib. Learn about their journey and motivations--inspired by Izzy's grandfather--and the impending launch of SteadyScrib, set to publicly debut later this year. Want to learn more about SteadyScrib? Find out more about their mission on their website. Want to watch the video...

This content is made possible through donations made by our listeners. In this episode, Mark Stacy, MD, and Peter Schmidt, PhD, discuss participation in clinical trials for Parkinson’s. Dr. Stacy is currently a Professor of Neurology at the Medical University of South Carolina, and has been involved in Parkinson’s care and research for over 30 years. Dr. Schmidt, a Davis Phinney Foundation board member, is the Chief Scientific Officer for Rho: a company that supports clinical trial strategy,...

This content is made possible by the generous support of viewers and listeners like you.  This is a special edition of the Parkinson’s Podcast, presented by the No Barriers Podcast. Join us for a candid conversation with Davis Phinney, co-founder of the Davis Phinney Foundation, and Kevin Kwok, a Foundation board member, as they share their compelling journeys with Parkinson’s. To learn more about the No Barriers Podcast, please visit: https://nobarriersusa.org/podcast/ Are you loving the...

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. In this episode, music therapist Hadley Rentz from Music Worx, Inc., explains the benefits of music therapy for people living with Parkinson’s. To learn more about Music Worx, Inc. and their AudAbility virtual music therapy class for people living with Parkinson's, visit MusicWorx.com. You can subscribe to learn more about Music Worx, Inc....

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. In this episode, Dr. Yasar Torres-Yaghi answers questions about OFF time in Parkinson's, including symptoms, medications, deep brain stimulation, and more. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! Want to read the article associated with this podcast? Check it out on our website! Want to...

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. Wayne Gilbert--a retired teacher and professor of English and educational psychology--was diagnosed with Parkinson's in 2005. Since his diagnosis, he has taken refuge in poetry, having written hundreds of "Parkie" poems, which he refers to as "metaphor medicine." In this episode, Wayne explains the importance of using metaphors in poetry to...

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:https://dpf.org/podcastdonation In this interview, Dr. Apurva Zawar, PT, DPT, discusses one of the most common non-motor symptoms of Parkinson’s, pain, the different types of pain, and where you can find tools and resources to manage it. Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You...

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation In this session from the Victory Summit Virtual Event: Sleep and Parkinson's, Dr. Aleksander Videnovic explains sleep attacks, RBD (REM Sleep Disorder), Restless Legs Syndrome (RLS), Insomnia, Daytime Sleepiness, Drowsiness, Fatigue, as well as how to manage these, the importance of understanding and attending to your circadian...

Deep Brain Stimulation (DBS) is a highly effective and reasonably safe treatment for Parkinson’s; however, it’s also frequently misunderstood by people who have been recently diagnosed. The success stories about how people are sometimes living symptom and medication-free as a result of getting DBS understandably lead many who’ve been newly diagnosed to want to get the treatment as soon as possible. In an earlier webinar, we invited an esteemed panel of experts to talk about Deep Brain...

In this episode, Dr. Bastiaan Bloem talks with Davis Phinney Foundation Executive Director, Polly Dawkins, about a recent article he co-authored, "The Elephant in the Room: Critical Reflections on Mortality Rates Among Individuals with Parkinson’s Disease." In the article, Dr. Bloem et al. write, "Although the survival of people with Parkinson's has improved over time, people with Parkinson's still live fewer years than their age- and sex-matched population comparators, albeit at older ages...

A previous version of this podcast had sound issues. We apologize and hope you enjoy! During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson’s. They talked about the difference between shame, guilt, and embarrassment, and they shared the various ways shame shows up for them. Again, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truth and share their journeys with all of us. In this...

During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson’s. We addressed kids, relationships, progression, falling, loss of identity, cognition, and more. In this episode, topics discussed include: How to address fear and shame in yourself and with others How to handle the fear of being marginalized What is the biggest fear you have of the unknown? Dealing with the fear and grief of missing out Handling the fear of being...

On September 17, 2021, we held The Victory Summit® Virtual Event: Mental Health and Wellness, shining the spotlight on how to manage the symptoms you can’t see in Parkinson’s. During this event, Dr. Gregory Pontone spoke to us about managing depression and anxiety in Parkinson's.  Topics discussed include: What are the statistics on how many people are currently dealing with depression? Wellness vs. Wellbeing What is mental illness? What is the impact of mental illness on Parkinson's? What...

Brian Grant had a long and successful 12-year career in basketball. In 2008, at age 36, Brian was diagnosed with Parkinson's. Davis Phinney was an Olympic Bronze medalist and Tour de France stage winner who claimed the most victories of any cyclist in American history. In 2000, at age 40, Davis was diagnosed with Parkinson’s. Since being diagnosed, both of these athletes have made it their mission to do everything they can to thrive not just survive with Parkinson's, and inspire others to do...

During this episode of the Parkinson's Podcast, Dr. Gregory Pontone and Dr. Indu Subramanian discuss how cultural context can impact what living well with Parkinson's looks like, including nutrition, exercise, community, and more.  Topics discussed include: What does "cultural context" mean? Holistic health in cultural context The importance of community in a cultural context How to help address the divide between clinical care and cultural context as a care partner/care giver Acceptance...

In this episode, Dr. Anna Lembke, an internationally recognized expert in addiction and dopamine, discusses addiction, dopamine's role in pain and pleasure, dopamine agonists, and more. **Please note, taking regular carbidopa/levodopa alone very rarely leads to someone experiencing impulse control disorders, so please do not delay taking these Parkinson’s medications because of a fear of developing an impulse control disorder. If your symptoms are getting in the way of your daily activities...

During this episode, we talked to five people, Michael S. Fitts, Allyson Kinney, Michael Fahning, Gerrie Blavat, and Brian Reedy, who are living alone with Parkinson’s, some by choice and others not. They shared their stories and offered ideas and advice on how to live alone and well with Parkinson’s. Topics discussed include: Why are you living alone with Parkinson's? How does a service dog help in living alone with Parkinson's? What is the hardest part of living alone with Parkinson's?...

During this session, panelists from the Living with Parkinson's meetup answered questions from the chat on everything Parkinson’s.  Topics discussed include: Why is it important to work with experts in Parkinson’s? What is a biomarker? Why does it take so long to develop a drug for Parkinson’s? What are the challenges with diagnosing Parkinson’s? What are the potential impacts of surgery on Parkinson’s symptoms? How do you make sure all medical providers have critical information? What is...

In this episode, Dr. Arun Mathur, a urologist with specialized knowledge of Parkinson's, explains the symptoms, causes, and treatments of urinary dysfunction in people with Parkinson's. Topics we discuss include: What are the differences between urinary dysfunction in different neurological diseases? What is urinary dysfunction? Urinary dysfunction can be a precursor to a Parkinson's diagnosis How does urinary dysfunction affect a person with Parkinson's quality of life? When should you...

In this episode, panelists discussed what they wish they knew when they were diagnosed with Parkinson's and what advice they would give now to those who are newly diagnosed. Topics we discuss include: What do you wish you had known when you were first diagnosed with Parkinson’s? Being kind, listening to elders, and seeking help Take things seriously, but not too seriously Don't ignore your symptoms Medications The moment when you are first diagnosed Having a movement disorder specialist...

In this episode of The Parkinson's Podcast, Greg Pontone, MD, Indu Subramanian, MD, and Bradley McDaniels, PhD, discuss how symptoms of depression begin and how to combat them. In this episode, we talk about: How Dr. Subramanian, Dr. McDaniels, and Dr. Pontone are working on What clinicians can do to make your symptoms better How Dr. Subramanian combines Eastern and Western medicine The impact of demoralization on people with Parkinson's The importance of normalizing diagnosing depression...