“I saw this podcast shared on Apple News and was so excited to see that my condition was being talked about!! I have suffered from endometriosis (and adenomyosis) for most of my life and yet no one knows about it. Two minutes into the episode and I was disappointed. Again. There is so much misinformation of this illness, even on government and medical websites. Please speak to excision specialists and the people who suffer from it, like me, to verify your information.
Endometriosis has been found in cis men, as well as women whose uterus never formed. In girls before their period begins and in women who have gone through menopause. Because of this, the theory of retrograde menstruation simply cannot be true. The most current research suggests that endometriosis begins forming while we are still in utero.
I am happy to see that endo is getting more attention, but misinformation is partially the reason we go undiagnosed for an average of 6-10 years and why so many of us receive less than adequate care from doctors who are just as misinformed as the general public.”
virginia_potts via Apple Podcasts ·
United States of America ·
04/23/23