Get ready to witness an incredible feat of determination and resilience in our latest podcast episode, where two powered wheelchair users, Maxwell and Joshua, talk about an awe-inspiring journey to race up Snowdon and raise £100k for a worthy cause. 🏔️💪 In this exhilarating episode, we'll delve into the inspiring story behind their ambitious mission, aptly named #KnowNoBounds. Join us as we follow Maxwell and Joshua's incredible journey, from the initial spark of inspiration to the rigorous...

Step into the great outdoors with us in this special episode of our podcast, "Resonate." Join Molly, Ben, Ellie, Sophie, and Alicia as they share their incredible experiences from a weekend event designed to resonate with adults living with SMA (Spinal Muscular Atrophy). In this conversation, our guests take you on a journey through the beautiful landscapes, shared adventures, and profound connections they discovered at this fully accessible outdoor event.  But it's not just about the event...

Welcome to a festive and reflective episode of our podcast, where Ross and Luis take you on a delightful journey through the holiday season and the highlights of 2023. As the year comes to a close, join us in celebrating the joy of Christmas while unravelling Luis's potential undercover Grinch tendencies. In this special episode, we'll rewind the tape and revisit the incredible year we've had on the podcast. From thought-provoking conversations to inspiring guest interviews, 2023 has been a...

Welcome to an inspiring episode of our podcast, where we delve into the remarkable journey of Sam and Alex, two extraordinary individuals living with SMA (Spinal Muscular Atrophy). In this heartwarming conversation, we explore "A Positive Mindset and Career Aspirations" and how their experiences have shaped them into the determined, optimistic, and vibrant individuals they are today.   Despite the challenges they've faced, Sam and Alex radiate positivity and embody the best versions of...

Welcome to a deeply moving and enlightening episode of our podcast, where we shine a spotlight on "The Importance of Spinal Muscular Atrophy Advocacy" and the transformative power of social media in advocacy efforts. In this remarkable conversation, we are joined by four extraordinary individuals - Portia, Eden, Hamany, and Maxwell - who are helping to drive change in the world of Spinal Muscular Atrophy (SMA) advocacy. Our guests share their heartfelt stories and reveal why they are so...

Welcome back to the highly anticipated second part of our podcast episode on the profound connection between mental health and living with a long-term condition. Building upon the captivating story we shared in Part 1, this episode delves deeper into the transformative power of finding support and the results that can come from it. In this continuation, we explore the pivotal role of support for people living with a long-term condition. We shine a light on the paths they can take to find the...

Welcome to a truly inspiring and heartfelt episode of our podcast, where we embark on a deeply personal journey exploring the powerful connection between mental health and living with a long-term condition. In this first part, we delve into the extraordinary story of how an individual with Spinal Muscular Atrophy found solace and support through an unexpected bond with a Mental Health Professional during their time in university. Join us as we unravel this remarkable tale of resilience,...

Welcome back to our podcast, where we continue to explore the fascinating journey of transitioning into school. In this special episode, we shift our focus to the next stage: transitioning from primary to secondary school. Join us as we dive deeper into this significant milestone in a child's educational journey. We'll hear from Grace McManus (mum of Sonny who lives with SMA) and our host Ross Lannon who share their insights and experiences on the social, emotional, and academic aspects of...

Welcome to our next episode, where we explore the exciting and sometimes challenging journey of transitioning into school, from nursery to primary. In this episode, we'll be diving deep into the many aspects of this significant milestone in a child's life with SMA. We'll hear from Portia Thorman and Charlotte Lavelle, as we explore the social, emotional, and academic dimensions of transitioning to primary school. We'll discuss the practical considerations of preparing for school, from...

Welcome to a brand new episode of our podcast, where we explore the incredible power of sport to transform lives and unleash human potential! In this episode, we'll be diving deep into the many ways in which sport can inspire, challenge, and elevate us to new heights. From the thrill of competition to the camaraderie of team spirit, sport has the unique ability to bring out the best in us, both as individuals and as a community. We'll be hearing from Cath McNicol and Jack Humphries. They'll...

Welcome to the latest episode of our podcast, where we take an unflinching look at the state of care in the UK today. As one of the wealthiest countries in the world, the UK has a moral obligation to provide high-quality care for all its citizens, particularly those who are vulnerable or in need. But as we'll discover in this episode, the reality is far from ideal. We'll be delving deep into the complex web of challenges facing the care system, from chronic underfunding to understaffing and...

Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE) SMA UK host Ross Lannon chats to guests Luis Canto E Castro and Cath McNicol about festivities and how we can surprise our loved ones with gifts this Christmas when you have a disability. *THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA* This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️ You can contact SMA UK on the following social media platforms ⬇️⬇️ ▶ |...

Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE) SMA UK host Ross Lannon chats to guests Sandie Roberts and Maxwell Mcknight about social media. Exploring the pros and cons and looking at how it can offer a great job opportunity for people and even lead to a career! *THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA* This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️ You can contact SMA UK on the following social media...

Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE) *TRIGGER WARNING* The conversations that take place today are of a sensitive nature regarding mental health, disability and mindset.  THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️ SMA UK host Ross Lannon chats to guests Anna Litvinova and Luis Canto E Castro about 'The Right Mindset'. Each of our guests today...

Welcome to the Living With SMA Podcast. In PART 2️⃣  of Episode 21 of the #LivingWithSMA Podcast we'll be looking at the pros and cons of university. We'll also be talking about work experience and sharing advice for those who decide not to go to university. #LivingWithSMA  #SMAUK #SMA #SpinalMuscularAtrophy Watch this episode on our YouTube channel here. Each of our guests today shares their own personal views and individual stories. You can contact SMA UK on the following social media...

Welcome to the Living With SMA Podcast. In PART 1️⃣ of Episode 21 of the #LivingWithSMA Podcast, SMA UK Host Ross Lannon talks to Mia Myers and Steven Jones about the university experience. They also look at whether having a disability makes you look at things differently when exploring higher education and they talk about accessibility and fighting for justice. Watch this episode on our YouTube channel here. Ross, Mia and Steven all come from different angles.  Mia is currently at...

Welcome to the Living With SMA Podcast. In PART 3 of Episode 20 of the #LivingWithSMA Podcast, SMA UK Host Ross Lannon chats to 17 year old twins Sam and Alex about the barriers they faced during their secondary school experience. We also talk about whether school days really are the best days of our lives and the assumption that people with physical disabilities also have learning difficulties.   #LivingWithSMA  #SMAUK #SMA #SpinalMuscularAtrophy Watch this episode on our YouTube channel...

Welcome to the Living With SMA Podcast. In PART 2 of Episode 20 of the #LivingWithSMA Podcast, SMA UK Host Ross Lannon chats to 17 year old twins Sam and Alex about the barriers they faced during their secondary school experience. We also talk about whether school days really are the best days of our lives and the assumption that people with physical disabilities also have learning difficulties.   #LivingWithSMA  #SMAUK #SMA #SpinalMuscularAtrophy Watch this episode on our YouTube channel...

Welcome to the Living With SMA Podcast. In PART 1 of Episode 20 of the #LivingWithSMA Podcast, SMA UK Host Ross Lannon chats to 17 year old twins Sam and Alex about having a disability and being in the education system.  We discuss how difficult it was for Sam and Alex to find an accessible school close to home and we also talk about social media and how it has developed over time.   #LivingWithSMA  #SMAUK #SMA #SpinalMuscularAtrophy Watch this episode on our YouTube channel here. Each of...

Welcome to the Living With SMA Podcast. PART 4 provides a fitting finale to a Episode 19 of the #LivingWithSMA Podcast.  SMA UK Host Luis Canto E Castro chats to 11 year old Sonny and his mum Grace about what life is like with SMA.  As August is SMA Awareness Month, we are shinning the spotlight on Spinal Muscular Atrophy by inviting 4 different guests from across the SMA Community to share their own lived experience.    Watch this episode on our YouTube channel here. #LivingWithSMA ...

Welcome to the Living With SMA Podcast. In PART 3 of Episode 19 of the #LivingWithSMA Podcast, SMA UK Host Luis Canto E Castro chats to 18 year old Maxwell Mcknight about what life is like with SMA.  As August is SMA Awareness Month, we are shinning the spotlight on Spinal Muscular Atrophy by inviting 4 different guests from across the SMA Community to share their own lived experience.    Watch this episode on our YouTube channel here. #LivingWithSMA  #SMALifeThroughTheAges #SMAUK #SMA...