Description
This one is for the kids. Long COVID can affect anyone at any age, but growing up with a chronic illness means you are learning who you are while realising who you will never be. This one is for the epidemic survivors who are still here, still around, even though the disease that changed your life is no longer the hot topic. This one is for the people living with post-polio who were told it was all in their heads. If that sounds familiar, this one is for you too. It’s for all of us. We need to talk to each other.
CN: This episode contains discussions of medical disbelief and trauma.
Texts mentioned in this episode:
(Referenced by Katie Bourdeau): COVID Long-Haulers Canada, Statement from the Chief Public Health Officer of Canada on July 7, 2021, Prevalence of long-term effects in individuals diagnosed with COVID-19: a living systematic review
Van Lier et al: Disease Burden of 32 Infectious Diseases in the Netherlands, 2007-2011
Ruth Bridgen’s thesis: Postpolio syndrome—“We aren't dead yet”
The Office of National Statistics March 2023 report
I would like to thank the British Polio Fellowship for connecting me with Frances and Ruth.
Full transcripts and references are available at www.massivelydisabled.com
Please rate and review Massively Disabled on Apple Podcasts and Spotify. This helps other people find the show.
You can follow the show on Instagram and Twitter @massdisabledpod
Hosting, producing, and editing is done by Élaina Gauthier-Mamaril
Music is by Morgan Kluck-Keil
This podcast is made with the support of the Centre for Biomedicine, Self and Society, Usher Institute, at the University of Edinburgh.
Welcome to the last episode of this season of the podcast. This is the one with all the claims. Élaina grapples with three themes that have emerged during this phase in the Massively Disabled journey and muses on what will come next. She is joined by Professor Nisreen Alwan, of Southampton...
Published 12/27/23
Step into the crip time warp with Élaina, Professor Felicity Callard, and Dr Mich Ciurria to discuss how we create knowledge of, about, and on illness. We discuss the “non-binary” category of illness, academic fantasies about research co-production, and why disabled people should be the ones who...
Published 12/13/23