Episodes
Welcome to the last episode of this season of the podcast. This is the one with all the claims. Élaina grapples with three themes that have emerged during this phase in the Massively Disabled journey and muses on what will come next. She is joined by Professor Nisreen Alwan, of Southampton University, and Christina Cortez, two people with lived experience of long COVID.
Texts mentioned in the episode:
My Cruel Teacher - Long COVID by Nisreen Alwan
Body Politic
Summa Contra Gentiles, Book 4,...
Published 12/27/23
Step into the crip time warp with Élaina, Professor Felicity Callard, and Dr Mich Ciurria to discuss how we create knowledge of, about, and on illness. We discuss the “non-binary” category of illness, academic fantasies about research co-production, and why disabled people should be the ones who define disability. Everyone on this episode is a disabled academic with various levels of job security, all of whom made the gamble to be extremely vulnerable. I entrust them in your care.
Sources...
Published 12/13/23
In this episode, Élaina talks to Jackie Baxter of the Long COVID Podcast and Peter Keogh, a professor of Health and Society at the Open University, about disabled knowledges of care. We trek through the history of HIV activism to better understand what is at stake when living with a chronic illness explodes the boundaries of what biomedicine can address. Oh, and this is the one where we talk about cripistemologies.
Texts mentioned in this episode:
Gays Against Genocide Pamphlet
Lisa Merri...
Published 11/29/23
This one is for the kids. Long COVID can affect anyone at any age, but growing up with a chronic illness means you are learning who you are while realising who you will never be. This one is for the epidemic survivors who are still here, still around, even though the disease that changed your life is no longer the hot topic. This one is for the people living with post-polio who were told it was all in their heads. If that sounds familiar, this one is for you too. It’s for all of us. We need...
Published 11/15/23
A philosopher, a historian, and Tucker Carlson walk into a bar… Welcome to Episode 2 of Massively Disabled, the one where Élaina lays out her methodology and rolls it up in a rucksack, ready for the road. We’re talking narrative medicine, citational practices, and the philosophical uses of history (whatever that is) to better understand how we are going to approach the topic of long COVID.
The clip from Hannah Sullivan-Facknitz was taken, with permission, from a longer interview for...
Published 11/01/23
Welcome to the Massively Disabled base camp! We’re glad you’ve made it. This is where you’ll meet Élaina and get answers to the questions that keep you up at night. Questions like “What is a long COVID research podcast?” and “Why is a philosopher talking to me about long COVID?”. Don’t worry, we’re all learning together. Let the adventure begin!
Sources mentioned in this episode:
The MCAT flashcards
The British Medical Journal article: Long covid outcomes at one year after mild SARS-CoV-2...
Published 10/18/23
“Long COVID” is the name masses of chronically ill people have claimed for themselves. But what is long COVID and what does it mean for us as a society? This is what my new podcast, Massively Disabled, explores.
My name is Élaina Gauthier-Mamaril and your mission, should you choose to accept it, is to journey with me for the next 6 episodes as we try to understand long COVID as a mass disabling event. I’ll introduce you to long-haulers, polio survivors, HIV and public health scholars, and so...
Published 10/05/23