“I have watched the interview multiple times with you two and it was AMAZING. I understand everything y’all said as being a caregiver for my wife with MS. She developed it approximately 10 years ago in her early fourties’ when she went blind suddenly in her right eye. After spinal taps, MRI’s, CT scans, X-rays blood test, flying the head of optomoligy from a conference in France back to Emory they miss diagnosed her. They called it “idiopathic optic neuritis”, which just means they couldn’t figure out what caused her optic nerve inflammation. Since then we figured out it was the onset of MS. Fast forward to December 2021 after having issues recovering from her second hip replacement surgery she was diagnosed with MS in her 50’s. Her paralysis has worsened and and she feels all the other symptoms y’all hit on in the interview. One thing I would love to see y’all hit on which I think would help the person stricken with MS is the caregiver for them. Not only does MS change the effected persons life it effects the caregiver and the family. Communication is KEY and is HARD, work life balance is challenging, your normal vacations, travel outings, group events, dinners, family gatherings, grocery shopping all change. Sorry for rambling but will be involved in keeping up with the podcast so I can help my wife of 28+ years and myself cope with the effects and changes that come our way. Thank Y’all and good luck….”
jrm/sm via Apple Podcasts ·
United States of America ·
03/16/24