Sports journalist and West Yorkshire branch patron Tanya Arnold sits down with Chief Executive Tanya Curry, who recently marked one year in post at the MND Association. I In this episode, Tanya discusses her tenure so far, her passion for supporting people affected by MND and her ambitions for the Association in 2024 and beyond.  

Have you seen our new awareness campaign, The Love Inside? In this episode, host Helen chats to the MND Association’s Director of External Affairs Chris James to find out more about the awareness campaign, the reasons behind exploring TV advertising for the first time in years and what the Association hopes to achieve from The Love Inside.   Also on the podcast is Mike and Zoe Sumner, who many of you might remember from Episode 9 of MND Matters: Dating after diagnosis. Mike and his wife...

In this thought-provoking episode of the MND Matters podcast, Yvonne Johnson, living with MND, and author Liv Little, whose dad died with MND in 2022, talk to the Association about some of the cultural challenges around navigating the disease.     Join us as we learn of some of the challenges around representation and medical support for people of colour in the MND community. While Yvonne shares her incredible story and the ways she’s trying to bring about change, Liv tells us about her dad...

In this captivating episode of the MND Matters podcast, Academy Award-winning actor Eddie Redmayne takes the reins as he sits down with the incredible Lesley Connor, an MND Association volunteer whose unwavering dedication has spanned two decades. Join us as we explore Lesley's journey, from her various roles within the Association to her current position as an MND Connect Helpline volunteer. Throughout this heartfelt conversation, Eddie and Lesley delve into the challenges, triumphs, and...

This month's episode was recorded on location at the very first Rob Burrow Leeds Marathon, which took place on Sunday 14 May. Our Press Officer, Ally, was roaming the course, Headingley Stadium, our charity tent and reception room to speak with some of our incredible runners and supporters, both pre and post race. You'll also experience the atmosphere when Kev and Rob crossed the finish line together. Listen in to get a sense of the occasion. We have guaranteed charity places for next...

What is motor neurone disease? Is there a cure? What causes it? Who does it affect? In this episode, our host Helen, is joined MND Association Head of Research, Dr Nick Cole. They discuss the basics about motor neurone disease and try to answer some of the most frequently asked questions about the disease. The Education and Information team at the Association produce high quality information for people living with and affected by MND, including carers, children and young people. The...

Did you know that it's estimated that 80% of people living with MND will need a wheelchair during their time living with the condition? In this insightful episode, our guest host, Pauline, who is Head of National Care at the MND Association, is joined by Simon Aspray, who is living with MND, and Maggy Hevicon, one of two specialist wheelchair therapists at the MND Association. Maggy, along with the care improvement coordinator, works with NHS wheelchair services to make sure people living...

This month we're joined by special guest host, Good Morning Britain’s Charlotte Hawkins. Charlotte speaks with Kuai Peng and David who discuss their experiences of being an unpaid carer for somebody with MND. Both highlight the need for more support for families who often take on the bulk of caring responsibilities and are shocked to hear MND Association stats about how few carers are aware of their right to carer’s assessment. If you’d like to get involved in the Support MND Carers...

This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for the MND Association and those affected by motor neurone disease. This is all part of our January campaign, #TakeOverMND. In the last of our weekly episodes, our host Helen chats to Julie, who is living with motor neurone disease (MND). Despite the challenges she faces, Julie has taken part in a number of fundraising events, including our...

This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for the MND Association and those affected by motor neurone disease. This is all part of our January campaign, #TakeOverMND. This week we meet Richard. Richard’s dad died of MND in 2013. Since then he has galvanised ‘the MND Army’ - a community of friends, family and colleagues who’ve been tireless in raising funds and awareness in the fight...

This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for the MND Association and those affected by motor neurone disease. This is all part of our January campaign, #TakeOverMND. This week we meet Abi. Last year Abi completed the Thames Bridges Ultra Challenge, along with a team of her colleagues and family, to show their support for her dad, who is living with MND. Abi talks to our host Helen about...

This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for the MND Association and those affected by motor neurone disease. This is all part of our January campaign, #TakeOverMND. First up is Luke. Our host, Helen, chats with Luke about his fundraising in honour of his mum, who is living with MND. Luke has set himself the incredible challenge of running 5K for a year, running the distance for 365 days...

“This has been the job of my life.” Sally Light, Chief Executive, sat down with host Steph to reflect on ten eventful years leading the MND Association ahead of stepping down from the role at the end of 2022. Your questions have shaped this episode and in answering them, Sally shares some of her proudest moments, her hopes for the future of MND research and her parting words for the MND community.

Seven days. 280 miles. More than £2 million raised. In this special episode of MND Matters, we went behind the scenes and followed our patron Kevin Sinfield OBE as he ran from Murrayfield, Edinburgh, to Old Trafford, Manchester, to complete his Ultra 7 in 7 challenge. You’ll hear from members of the MND community about why they felt compelled to come out in their hundreds to support Kevin and his team, and what it means to have someone like Kevin raising awareness and supporting the fight...

NHS Continuing Healthcare (CHC) is a complex subject, one that is often misunderstood, but can be hugely important for those living with motor neurone disease (MND). In this episode, we speak to Dan Harbour from Beacon CHC to understand CHC, how to access it, and what support is available throughout the process. Dave Setters, who is living with MND, and Marian Ward, who lost her husband to MND, join us for a frank discussion about their personal experience navigating the system, and share...

In this uplifting episode, Steph is joined by Ken Blackburn, who is living with MND, and Antonia Lee-Bapty. Ken films what he gets up to in his all-terrain wheelchair for his Life after wheels vlog. Antonia is Managing Director at Euan’s Guide, the disabled access charity. Ken and Antonia share how MND can make getting out and about more difficult, plus their top tips for accessible days out. Ken uses a communication aid and pre-programmed his answers ahead of the podcast recording. More...

In this thought-provoking episode, Helen is joined by MND researchers; Professor Majid Hafezparast, Dr Greig Joilin, Libby Moody and MND Association Branch volunteer, Hetty Smith. They all share the importance of gifts in Wills and the difference they have made to their work in research and care. Debbie Hyslop, Legacy Marketing Officer at the MND Association, also joins us to explain what gifts in Wills are, dispel the myths around these gifts and shares how you can write your Will for free...

Becky is joined by social media influencer, Misha Grimes, who lost her dad, John, to motor neurone disease in August 2021. Misha became a carer for her dad during his illness. In this emotional but uplifting episode, Misha shares with you the journey her and her family have been through since John’s diagnosis until now, nearly a year since his death. We explore topics such as denial, acceptance, the pandemic, being a carer and celebrating the John's life. Find out more about the MND...

Celebrate pride month with the MND Association. MND does not discriminate, it can affect anybody – including the LGBTQ+ community. In this episode we bring together Sam, who is living with MND, and Angela who is a volunteer at Opening Doors, a charity providing information and support services specifically for LGBTQ+ people over 50 in the UK. They discuss some of the challenges such as preconceived assumptions or barriers to healthcare and why inclusive health and social care is vital for...

Helen is joined by Jennie, who was diagnosed with MND in September 2021, and her friends Natalie, Amanda and Justine. Together these ladies have been friends for over 3 decades. In this heartfelt episode the ladies discuss the impact of a friend's MND diagnosis. Jennie shares how she broke the news of her diagnosis with her friends and how their friendships have strengthened from it. She talks openly about the different reactions she received and how her friends have been a much needed space...

In this episode we are joined by chair of the All-Party Parliamentary Group on MND, Andrew Lewer MBE MP, who discusses how he raises the profile of MND in Parliament. We are also joined by Campaigns Volunteer Sue Heal and member of the Patients United 2 End MND group Nicola Waters who highlight the different ways they have gotten involved in MND campaigning. From signing petitions to knocking on the door of 10 Downing Street there are lots of different ways to get involved. If you would...

Beck is joined by Nick Goldup, Director of Care Improvement at the MND Association, and Stuart Moss, Head of IT Innovation at Rolls Royce, who together form part of the MND Next Generation Think Tank. In this episode, Nick and Stuart discuss how the Think Tank came about, who is involved, and how tech giants are collaborating to create solution for issues facing people living with MND. We also get to hear from Mike, living with MND, his partner Mary, and Diana, who is also living with MND....

Beck and Chris are joined by Jane Smith, a Specialist Occupational Therapist, Tom, who is living with MND, and his wife Alice to talk about home adaptations. Jane discusses the work she’s been doing on the MND Association's Act to Adapt campaign, which aims to ensure councils are meeting the housing needs of people with MND. To get involved in the campaign, visit the Act to Adapt Hub. Tom and Alice discuss life with MND, dealing with Tom's progression and about grant support provided by the...

Fundraising is key to the work of the MND Association. In this episode, we chat with Jez, Tamara and Matt – all three are inspirational fundraisers for the Association. They’ve raised and are still raising money to help people living with motor neurone disease and their families. In this episode, Chris chats to all three as they discuss their challenges ranging from the London Marathon, a nationwide cycle and 50 different challenges in 12 months. They chat about the best bits, the tough...