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PWSA | USA
PWS United
Welcome to PWS Connect, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.
This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters.
Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.
Listen now
Ratings & Reviews
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5.0 stars from 15 ratings
Helpful, Resourceful, Interesting
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“Anne and Carrie host a great podcast for the PWS Community - and those interested in getting to know about PWS - full of great info, resources, and interesting guests that delve into timely topics. So grateful!”
jinjersnap via Apple Podcasts ·
United States of America ·
10/02/24
Learning A Lot!
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“Great content and easy to consume. Keep it coming!”
Steven12501 via Apple Podcasts ·
United States of America ·
10/01/24
Episodes you do not want to miss!
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“Real conversations. With Amazing people!”
Sarah (Khaled mom) via Apple Podcasts ·
United States of America ·
09/19/24
Recent Episodes
Published 11/19/24
The latest in PWSA events and PWS news in research, family support, and advocacy. Get a brief introduction to International 15Q Day and how you can help support PWSA | USA for our 2024 Angel Drive fundraiser. Other topics include the 2025 International PWS conference and FPWRs travel scholarship,...
Published 11/19/24
PWSA | USA's communication team, Carrie and Anne, speak with PWS mom, Emily Felt, about self-care for caregivers. We talk about what caregiver burnout may look like, various ways to practice meditative activities and why, the importance of self-advocacy and external support, what gratitude does...
Published 11/12/24
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