Updates on PWSA events and fundraisers, along with the latest news in advocacy, family support, and research in the PWS community.
PWSA | USA's hotline is (941) 312-0400
Links:
Therapeutic-interventions-1-1.pdf
Move Play Thrive | Brain and Sensory Foundations Course - Home
Share Your Story - Prader-Willi Syndrome Association | USA
Home - 2025 United in Hope PWS Conference
PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA
PWS Hope United: Dance Silly for Prader-Willi
The Giving Pump 2024, CPD Energy & Prader-Willi Syndrome Association
Events from October 24 – June 24, 2025 – Prader-Willi Syndrome Association | USA
New England Prader Willi Conference Tickets, Sat, Nov 2, 2024 at 8:30 AM | Eventbrite
Halloween Fun for Everyone - Prader-Willi Syndrome Association | USA
https://support4pws.com/
FDA Priority Review of DCCR for PWS: Latest Update and What It Means - Prader-Willi Syndrome Association | USA
Home | Reagan-Udall Foundation
Success-for-PWS-FDA-Rare-Disease-Innovation-HUB_Oct10_tvs.pdf
Adults with PWS Advisory Board Gathers in Phoenix: Shaping the Future of Support, Advocacy for Individuals Living with PWS - Prader-Willi Syndrome Association | USA
Forces of Nature, A PWS Book Review - Prader-Willi Syndrome Association | USA
Embracing Differences | The Journey Behind "It Starts With Hello: Katie’s Story About Prader-Willi Syndrome" - Prader-Willi Syndrome Association | USA
Spreading Joy: Operation Holiday Cheer Returns to Support PWS Families in 2024 - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn: Aging in PWS - Prader-Willi Syndrome Association | USA
Webinar Registration - Zoom TREND Webinar
Remote Light Therapy Study:
[email protected]
Conference 2025 - IPWSO: Abstracts Submissions
Project Echo - Prader-Willi Syndrome Association | USA
ECHO 4 PWS: Cardiac Concerns webinar recording
Hope for the Holidays - Prader-Willi Syndrome Association | USA
A Letter to Friends and Family - Prader-Willi Syndrome Association | USA