We all have stories to tell, and we all have a right to tell them... but on social media, sometimes it feels like we have to do it in a specific way. Because if we don't use the perfect words and the right framing, we risk a small but vocal cohort of other disability parents and disabled adults coming into our space, monitoring our content, and sometimes harassing us through comments and messages. And it goes without saying that this kind of behavior is not okay and can actually cause long-term harm for both parents and their medically complex and disabled children. In this episode, I’m joined by Alyssa Nutile share thoughts from Erica Stearns, Hailey Adkisson, and Suzi Boubion, as well as our own commentary, on why you’re allowed to share your story on your terms, the benefits of sharing, and the harm that comes with being silenced and isolated. We hope this empowering and nuanced episode will give you the confidence to share your experiences (if you so choose) and maybe make you think twice about the way you engage with your community on social media. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Links: Join Sticker Club so you can support The Rare Life all year long (and get some awesome stickers as a thank you!) Join The Rare Life newsletter and never miss an update (including the moment when Sticker Club opens!) Fill out our contact form to join upcoming discussion groups! Listen to Ep 155 with Aneesa. Follow Alyssa & Erica on Instagram at @caffeinated_caregivers! Follow Hailey on Instagram @growing_juniper! Follow Suzi on Instagram @oliversodyssey1! Follow us on Instagram @the_rare_life! Erica’s Episodes: 54: Disabled Adult Perspective Hailey’s Episodes: 117: Traumaversaries