Reviews
Thank You Madeline, so much for The Rare Life. Your content touches more people than you may think. I am a mother of a medically complex child, though he does not have a rare diagnosis of any kind. I had a complicated pregnancy and traumatic birth with my son Vincent, who arrived unduly early at...Read full review »
littlebit322 via Apple Podcasts · United States of America · 10/30/23
I love this podcast because of the honest and authentic conversations Madeleine brings to the table. As a licensed psychologist that works with neurodivergent children, it makes my heart so full that there are resources like this podcast for all families to listen to!
doctorTND via Apple Podcasts · United States of America · 08/09/23
I am a nicu nurse. It was so nice to hear how so many of us feel. And what parents can expect. I am retired now but I still miss the babies and the families I got close too. It is a privilege to take care of these little babies who fight to live. And make no mistake we do love the babies I mean...Read full review »
555387654 via Apple Podcasts · United States of America · 05/26/23
Thank you for sharing this episode and Alexis, for sharing your story. I needed to hear this. Thank you.
melcombs via Apple Podcasts · United States of America · 03/30/23
I have enjoyed listening to my first few episodes. As a mom of a daughter with multiple diagnoses I have found much to connect with. Thanks for sharing your heart.
Sleepyteacher via Apple Podcasts · United States of America · 12/12/22
So many good subjects and so good to know we are not alone. Thank you for your hard work to bring these podcasts to us and help us feel less alone!
ptmjecz via Apple Podcasts · United States of America · 12/11/22
If you’re in anyway involved in the life of a child with disabilities or medical complexities this is a great listen. And a great way to find community!
jeggggg1111 via Apple Podcasts · United States of America · 12/11/22
Life as a parent of a child w disabilities is one of the most unique experiences that literally only other disability parents can relate to. I love how each podcast is relatable but also how it can help others who don’t know the struggle.
zaira tinoco via Apple Podcasts · United States of America · 12/10/22
Finding a community is essential for parents of kids with rare diseases! This podcast has been a great complement to the other wonderful people I’ve connected with on social media who are navigating a similar life. Empowers me on my good days and helps lift me on up my difficult days!
melissaceke via Apple Podcasts · United States of America · 12/10/22
It’s so nice being able to relate to another family with everything medical moms go through! Highly recommend!
Em_ro via Apple Podcasts · United States of America · 12/09/22
Finally a place I can go to just be heard and seen, I appreciate this podcast in so many ways. I don’t feel so alone. 💜
LydiaNQ via Apple Podcasts · United States of America · 12/09/22
This podcast gives a voice to my feelings! It’s so relatable and refreshing to hear other stories like mine.
Laur238 via Apple Podcasts · United States of America · 12/09/22
Love! Rare parents need someone in their corner who “just gets it”
KrisSevel via Apple Podcasts · United States of America · 12/09/22
This podcast is one place that I have finally felt seen, hear, understood and supported. The topics are so relevant. Majority of the time I catch myself thinking oh it’s not only me other parents out there are dealing with the same thing.
Thewholeforrest via Apple Podcasts · Canada · 12/09/22
This podcast is such a game changer for me. Parenting a medically complex kid is hard and isolating, but these episodes help me to remember that I’m not alone. I loved finding a sense of community in this series!
Rsexton2 via Apple Podcasts · United States of America · 12/09/22
Thank you for creating this podcast. It feels less isolating to hear other stories of parenting a disabled child. I find something to relate to on every episode.
LaurenF25 via Apple Podcasts · United States of America · 12/09/22
The best thing to happen for my mental health since receiving my sons diagnosis… finding this podcast!
alli_7_93 via Apple Podcasts · United States of America · 12/09/22
This podcast is a breath of fresh air. When having a child with medical complexities the easiest everyday tasks can be overwhelming. Madison does a great job with providing knowledge and creating a virtual table for all of us special needs parents to sit around and be apart of.
epwalker via Apple Podcasts · United States of America · 12/09/22
This is the best podcast for education on children with rare conditions and what their life might look like. I feel like I have a group of friends that I am surrounded by because the topics are things I am dealing with and going through. When I am having a hard day this podcast helps lift my...Read full review »
fcyyu via Apple Podcasts · United States of America · 12/09/22
This show really sees every person in their journey in these difficult lives. It helps us to feel more seen and also know we aren’t alone.
oconnor_strong via Apple Podcasts · United States of America · 12/09/22
This podcast has been such a blessing in my life. As a mama to a kiddo with a rare disease, I have at times felt very isolated. It is so powerful to hear these stories and know I am not alone. Such a great resource for families with medically complex children or for anyone know wants to learn to...Read full review »
KatrinaMcElhinney via Apple Podcasts · Canada · 12/09/22
I have loved listening to this. The episodes are so thought out and cover so many subjects. I recommended this any parents going through this crazy world with medically complicated kiddos or any friends/ family that can relate and love to learn.
23456ab via Apple Podcasts · United States of America · 12/09/22
The Rare Life has been the support and has given me strength and knowledge that I needed on all the tough days of parenting a child with a disability. The episodes are so well done, I look forward to listening every week!
A.L.W.47 via Apple Podcasts · United States of America · 12/09/22
This is what I’ve been missing in my life since we found out our daughter has a rare disease. When I feel like the closest people to me still don’t understand this life, I know I can feel seen here. Thanks for keeping it real!
Momma Fanny via Apple Podcasts · United States of America · 12/09/22
I was hesitant to listen for months because I felt like my whole life was already consumed by this life, but it was such a refreshing outlet because I finally didn’t feel alone.
MamaCoolper via Apple Podcasts · United States of America · 12/09/22
This podcast is everything I needed to hear this year after my son was diagnosed with a rare genetic condition during a global pandemic. When I was feeling lost, alone and confused, this podcast featured moms, therapists and people who just understood all of the feelings I had. This podcast will...Read full review »
bmalcox via Apple Podcasts · United States of America · 12/09/22
Thank you for your work
momomarpy via Apple Podcasts · United States of America · 12/09/22
So encouraging! Thank you for making us feel lie we are not alone
mightymouse416 via Apple Podcasts · United States of America · 12/09/22
This podcast has literally saved me. It’s one of the only I listen to. It helps me remember that I’m not alone and people DO understand. It is a must listen for all.
KarlHendo via Apple Podcasts · United States of America · 12/09/22
Madeline not only covers the good, but she also covers the hard things of being a mother of a child who has a disability or disabilities. Her podcasts are friendly reminders that there are others in the thick of it. We may not be going through the same things, and we all handle our things...Read full review »
shitzou via Apple Podcasts · United States of America · 12/09/22
So grateful I found this podcast. It’s been a huge blessing to me as we just found out my son’s rare genetic condition. Thank you!
!!Doesn't work!! via Apple Podcasts · United States of America · 12/09/22
So thankful to have found this podcast. As a mom to kids with disabilities it’s easy to feel isolated and alone. Nice to have other mamas who get it!
Lotsofbotts via Apple Podcasts · United States of America · 12/08/22
This podcast is like having a friend to talk to talk to about all the complicated emotions and logistics of navigating life as the parent of a medically complex child. I find myself nodding along (and then re-listening) to basically every episode.
SeedyC via Apple Podcasts · United States of America · 12/08/22
Love this podcast. Madeline and her guests are so relatable to medical moms and moms with disabled children. Helps me feel supported through this motherhood journey.
ilovekoreatotesalot via Apple Podcasts · United States of America · 12/08/22
This podcast helps me feel less alone in my journey with two medically complex girls. Thank you for what you do!
Emac0511 via Apple Podcasts · United States of America · 12/08/22
Having a child with a rare syndrome can feel so isolating. I find myself listening when I need an outlet to feel like I am not alone and that there are other parents and families out there experiencing the same things that mine is! I would also recommend family and friends listen to get some...Read full review »
colleenrie via Apple Podcasts · United States of America · 12/08/22
I felt a huge relief after I found Madeline, and her podcast. I feel seen and validated. Love it
Aldana0807 via Apple Podcasts · United States of America · 12/08/22
I love the Rare Life Podcast. Their content is so relatable and they aren’t afraid to talk on tough conversations. I think this is a great podcast for newly diagnosed parents of a medically complex child or one’s who have been in the medical world for a long time! Highly recommend!
Devina_CFmama via Apple Podcasts · United States of America · 12/08/22
this is THE BEST podcast for medical parents, not only does it make you feel less lonely in this life, it gives you different perspective and outlooks on different situations! i love it so much!
Hzstjgjc via Apple Podcasts · United States of America · 12/08/22
So wonderful to listen to someone who fully understands and lives this life along side you. I feel seen and validated! Thank you!
KTB95 via Apple Podcasts · United States of America · 12/08/22
This podcast has been a lifeline during challenging seasons of our daughter’s life. I always feel seen, validated and loved when listening to these episodes. Madeline does a great job of sharing different views and it’s great to hear the different perspectives. Huge supporter!
Alexandra Emory via Apple Podcasts · United States of America · 12/08/22
So happy I was told about this podcast, thank you for all that you do!!!
Lar lar0101 via Apple Podcasts · United States of America · 12/08/22
Super relatable and helpful podcast for parents of kids with special needs. Thanks for all your hard work, it is making a difference. :)
JayJay in LA via Apple Podcasts · United States of America · 05/06/22
Wow. In a world that feels so isolating, this podcast has brought me life, a community, and support. The way that Madeline relates to her listeners is so valuable and the topics are so unique and relevant! I can not say enough good things!
Ole67823561 via Apple Podcasts · United States of America · 03/12/22
I am a mother of a child with a rare syndrome. I live in a small town and don’t know anyone in my town with a rare diagnosis. Listening to Madeline and her guests every week help me feel not alone. Their stories help me feel seen. I find myself nodding in agreement every week. If you have a rare...Read full review »
Freyas lucky arm via Apple Podcasts · United States of America · 02/05/22
I find this podcast so helpful. As a parent of a medically complex child, hearing stories and special topics of other children and families has been enlightening, reassuring and helpful.
AmandaWhiting via Apple Podcasts · Canada · 01/19/22
I work as a CNA on a medical floor and I am in nursing school. I LOVE this podcast as a way to connect with how some of the families and caregivers are feeling. I’m a parent too and always love hearing the love that shines when parents talk about their kids.
amberpdidit via Apple Podcasts · United States of America · 09/30/21
When listening to the The Rare Life, I constantly find my self nodding my head in camaraderie with Madeline and the guests. It is so very comforting to hear many different people sharing about the realities of their lives as they navigate all aspects of caregiving for children with a rare...Read full review »
EricaJolene via Apple Podcasts · United States of America · 09/17/21
Madeline is so relatable and her guests are as well. Any parent who has a medically complex child should listen or simply anyone who is interested in this topic. It’s the only podcast where I have listened to every episode.
Lysa0044 via Apple Podcasts · Canada · 07/16/21
I stumbled upon The Rare Life podcast shortly after my son received his CTNNB1-syndrome diagnosis and wow did I find it at just the right time. This podcast has helped fill my empty cup in a way that only a special needs mama would understand. I was feeling very isolated and like nobody...Read full review »
Brittany Mils via Apple Podcasts · United States of America · 07/06/21
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