Community
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“This is what I’ve been missing in my life since we found out our daughter has a rare disease. When I feel like the closest people to me still don’t understand this life, I know I can feel seen here. Thanks for keeping it real!”
Momma Fanny via Apple Podcasts ·
United States of America ·
12/09/22
More reviews of The Rare Life
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“If you’re in anyway involved in the life of a child with disabilities or medical complexities this is a great listen. And a great way to find community!”
jeggggg1111 via Apple Podcasts ·
United States of America ·
12/11/22
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“I am a mother of two, and my younger son has a myriad of medical challenges associated with a very rare genetic variation.
I had been unable to find a community of people to connect with - really connect with. After hitting the breaking point emotionally, I thought - try social media! I got on...”Read full review »
EpilepsyWarriorMama via Apple Podcasts ·
United States of America ·
05/21/21
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“I am a nicu nurse. It was so nice to hear how so many of us feel. And what parents can expect. I am retired now but I still miss the babies and the families I got close too. It is a privilege to take care of these little babies who fight to live. And make no mistake we do love the babies I mean...”Read full review »
555387654 via Apple Podcasts ·
United States of America ·
05/26/23
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