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iHeartPodcasts
Untold Stories
Life with a Severe Autoimmune Condition
For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each...
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Ratings & Reviews
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4.4 stars from 16 ratings
So important to the community
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“This podcast is so important for this community. Such a great space to share the stories of the people living with these conditions. Despite the challenges of living with MG, this fills me with so much hope.”
MESTRK via Apple Podcasts ·
United States of America ·
04/09/24
It’s the little things
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“I was shocked to find this show and see myself in every story. 12 years into life with MG and things have gotten easier to manage. At the end of the day it’s realizing your not alone that fills in the cracks on the hard days. Thank you for making this show!”
C Buhay via Apple Podcasts ·
United States of America ·
02/23/24
Untold Story
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“I ran upon this podcast while in my car would love to tell the story of my Aunt who was a star athlete and got diagnosed with this disease in 1982 she passed in 88”
Breesa2 via Apple Podcasts ·
United States of America ·
07/24/23
Recent Episodes
Published 02/14/24
Raymond, a retired designer, lived with HIV for 40 years before the onset of his myasthenia gravis (MG) symptoms. As a longtime caregiver for his mother, he was no stranger to the hospital visits and advocacy that is part of seeking quality care. However, after his mother’s passing and the start...
Published 02/14/24
Jacqueline, also known as Jacq, lived in New York City with big dreams of succeeding in the fashion industry. However, her life took a significant turn after she was diagnosed with myasthenia gravis (MG), which had a profound impact on her career and marriage. Jacq faced debilitating symptoms,...
Published 01/31/24
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