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“THANK YOU! Thank you for sharing your story. Thank you for being willing to just talk about this ugly disease! I had an incredibly fast trajectory. Feb of 2022 I started having symptoms. From onset of symptoms to dx was about 3 days. I started with slight tingling in my left leg and the worst migraine I ever had. Laying on the bathroom floor, crying, nauseous. I just couldn’t get relief for about 4 hours. I finally took 2 Benadryl which allowed me to go to bed and woke up with both my legs numb. Thought it was a pinched nerve and went to a chiropractor who was very hesitant to adjust me based on my symptoms. His recommendation was to follow up with the neurologist. I went to bed that night, thinking it would be better the next morning, and it continuously got worse to the point where I could no longer walk. My husband put me in the car and drove me to Mayo Clinic where I spent seven days doing multiple tests which showed conclusive multiple sclerosis. I received high-dose steroids for five days and was sent home to follow up with outpatient physical therapy. I was using a walker with significant numbness to my legs still. I did pretty well for about seven days and then started to fall and not have feeling in my legs again but then also in my arms as well. Went back to Mayo and spent six weeks inpatient receiving high-dose steroids, along with 7 rounds of plasmapheresis and started on Rituxan as I had become a quadriplegic. I was told I most likely would be in a motorized wheelchair for the rest of my life. However, I am now walking with a cane and back to work. The plasmapheresis was a game changer! I was rotated to Ocrevus due to insurance and it almost killed me. I have permanent damage from Ocrevus now on top of the MS. I finally saw my now MS specialist at Cleveland Clinic who rotated me to Kesimpta which has been amazing. I am no longer walking with a cane. I’m overall feeling so much better. I still have rough days but I’m actually looking towards the future again. This has also been difficult as I am a medical practitioner. I’m the one who has been caring for these patients… I’m not supposed to be the patient. But it has also allowed me to grow as a provider in the humanization of MS with my patients.
This podcast is more important than you will probably ever know!
Thank you!”
Danshauna1997 via Apple Podcasts ·
United States of America ·
03/15/24
More reviews of MeSsy with Christina Applegate & Jamie-Lynn Sigler
“I’m here because they found a center lesion on my brain, experiencing face numbness, extreme fatigue, and many more symptoms. Having a spinal tap next week. I’m here for comfort and education on how to live and deal with this disease. I’m terrified as I want more children and want to be there for...”Read full review »
albanks36 via Apple Podcasts ·
United States of America ·
03/19/24
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“Hi to you both and thank you. I am married with 2 daughters living in Chicago. I was also diagnosed in 2021 at 51 years old. I would imagine it’s not very common to be diagnosed with MS and then to have a close friend, unfortunately be diagnosed with the same disease. You are so fortunate...”Read full review »
Dannalea2 via Apple Podcasts ·
United States of America ·
03/13/24
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“I have watched the interview multiple times with you two and it was AMAZING. I understand everything y’all said as being a caregiver for my wife with MS. She developed it approximately 10 years ago in her early fourties’ when she went blind suddenly in her right eye. After spinal taps, MRI’s,...”Read full review »
jrm/sm via Apple Podcasts ·
United States of America ·
03/16/24
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