Reviews
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“I thought I would like this podcast, but it feels so overproduced and contrived. Music is fine on a podcast, but the music they chose is way over the top and too loud in relation to the person’s voice, I agree very much with the person that said this podcast has a lifetime movie type feel and...”Read full review »
mdl6841 via Apple Podcasts ·
United States of America ·
03/03/24
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“This was great! I hope it comes back!”
fmtiggie67 via Apple Podcasts ·
United States of America ·
02/13/24
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“Interesting and entertaining podcast!”
praxis78 via Apple Podcasts ·
United States of America ·
01/28/24
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“Pretty interesting except for the random and very distracting music.”
violetjohnson via Apple Podcasts ·
United States of America ·
01/11/24
“I love these types of documentary style podcasts but find it frustrating when they’re not updated regularly without explanation. I hope more episodes are coming soon. This is one I would definitely continue listening to. Very interesting and love the host’s voice.”
AngryEbayer via Apple Podcasts ·
United States of America ·
01/10/24
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“What a thoughtful, informative and entertaining listen! Updated: binged 2nd season over break. Super compelling stories and information. Really showcases the humanity within healthcare. Five stars and then some.”
LBAustinP via Apple Podcasts ·
United States of America ·
01/02/24
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jkd:)( via Apple Podcasts ·
Canada ·
12/31/23
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“I’m a medical professional & I expected to love this- but the melodramatic presentation & the narrators fruity, breathless voice & style ruined it- unsubscribed!”
Coloradoorbust18! via Apple Podcasts ·
United States of America ·
12/16/23
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“What kind of medical/science based podcast doesn’t include scientific explanations of what’s happening and how it’s treated? This felt like a Lifetime movie focusing on the emotional battle instead of the actual symptoms, diagnosis, treatments, and explanations. Way too repetitive about how...”Read full review »
Whole Foods Shopper via Apple Podcasts ·
United States of America ·
12/15/23
“The lesson this podcast teaches is to get a 2nd opinion, 3rd opinion, 4th opinion! 5th opinion if you have to. Don’t give up in your pursuit of an accurate diagnosis!! The squeaky wheel gets the oil. Don’t give up until you can find that practitioner who accurately diagnoses and treats you. Don’t...”Read full review »
CH00bee via Apple Podcasts ·
United States of America ·
12/12/23
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“This is in my short list of new favorites. I get excited when a new episode comes out. These are sometimes frustrating, sometimes heartbreaking stories about the human experience of the journey to an uncommon diagnosis. There are many reasons why a person’s disease, syndrome, illness goes...”Read full review »
Rebecculous via Apple Podcasts ·
United States of America ·
11/29/23
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“I look forward to hearing the stories. The only thing I would change is the background music, in my opinion it is distracting.”
audibleloss via Apple Podcasts ·
United States of America ·
11/29/23
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“Thank you for this show- I have been binging it. So interesting & well formatted. Thank you sharing their stories”
1__2_3 via Apple Podcasts ·
United States of America ·
11/27/23
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“Love this podcast!! It is very interesting and I like trying to figure out each case before the diagnosis is revealed. Keep the episodes coming!!”
KarlaHSmith via Apple Podcasts ·
United States of America ·
11/18/23
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“Thank you for sharing these people’s stories. I love how each one is presented. I just stumbled upon this podcast last month & have found myself binging all the episodes… so addicting!”
lovelovethispodcasg12345 via Apple Podcasts ·
United States of America ·
11/17/23
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“Every episode invokes race and status as a contributing causal element, typically when mere medical incompetence is the likely cause (all cases I've listened to post-date the radical destruction of medical competence around 2010). This show is less about interesting medical cases than it is...”Read full review »
idolog via Apple Podcasts ·
United States of America ·
11/09/23
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“Interesting and a good change ,well done”
PinkBunna via Apple Podcasts ·
United States of America ·
11/04/23
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“Amazing to see people and doctors both exposed to these real stories helping so many people….great work!”
Mwood613 via Apple Podcasts ·
United States of America ·
11/03/23
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“Show is ok but the last episode sucked.”
soccer197911 via Apple Podcasts ·
United States of America ·
11/01/23
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“Everything is racism? Stop. Please.”
Bellamammal via Apple Podcasts ·
United States of America ·
11/01/23
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“I am literally crying because of the relation I have with one of these episodes. Thank you all for sharing your stories.”
Duffy.Beth via Apple Podcasts ·
United States of America ·
10/25/23
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“Great podcast”
Joshua Bridges Jr via Apple Podcasts ·
United States of America ·
10/25/23
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“O M G as I sit in my car at 1am in Phoenix after listening to your Podcast, I sit in complete awe. As I write this I’m having a episode, Michelle I can relate! Right now the right side of my face tingling, right side of my throat numb, right fingers twitchy, pain in my spine, yep another episode!...”Read full review »
J_rmy via Apple Podcasts ·
United States of America ·
10/11/23
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“Loving the podcast. I am an internal medicine physician and love hearing stories from patients point of view and trying to see how fast I can guess the diagnosis. I just wanted to send a message to Shelby from episode 4. Please get yourself and your daughter evaluated for Ehlers Danlos Syndrome....”Read full review »
Tony-C-LA via Apple Podcasts ·
United States of America ·
04/21/23
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“Pretty awesome 😎 podcast I wish it had more this people you ask it seem they had a hard time with their disease. Young teenagers who are reading this to easy the period here are three thing from my experience
1. Have ibuprofen and my fool it should help take it before you have it or when it...”Read full review »
girl toca via Apple Podcasts ·
United States of America ·
03/22/23
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“The timeliness of this podcast is unreal for me. So far two episodes pertain to diagnostic journeys I’m on right now and I’m pretty sure there’s a third. I feel so heard and seen and I love Lauren’s voice. Lauren handles all of her guests with respect and empathy. I understand this podcast may...”Read full review »
Zebra4L143 via Apple Podcasts ·
United States of America ·
02/03/23
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“Very minimal medical treatment information. Spends most of the time picking out faults with physicians/nurses and the health system as a whole.”
llmm1725 via Apple Podcasts ·
United States of America ·
12/22/22
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“Thanks to all for sharing their stories. I have Multiple Sclerosis and it also is a disease that is a matter of ruling out quite a few others.”
HulaDog58 via Apple Podcasts ·
United States of America ·
12/16/22
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“I hope you will start to document and share the horrific experiences of the Covid shot injured.”
Thee Truth! via Apple Podcasts ·
United States of America ·
12/15/22
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“This engaging podcast focuses on people who suffer from rare diseases, often in agony for decades without an accurate diagnosis. It is sad, but the episodes end on a hopeful note. I want to know why these illnesses are so hard to diagnose. Some seem like “textbook” symptoms. Is it a problem with...”Read full review »
Mogadeet1451 via Apple Podcasts ·
United States of America ·
12/13/22
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“I have only listened to one episode so far but it seems like it will be an interesting and helpful show. Hopefully it will help people who suffer without knowing the cause. My daughter has Type 1 diabetes “T-1D” That would be an important chronic illness to examine. She is very bright and...”Read full review »
BellaSalem via Apple Podcasts ·
United States of America ·
12/12/22
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“I just found out about this show today from another podcast I listen to and then I binged all the episodes in one day. I love it and can’t wait to hear the new stories next season!!”
The Screaming Head via Apple Podcasts ·
United States of America ·
12/10/22
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“I’m so happy I found this podcast; it’s thorough, well done, and listens like a dateline episode. It’s SO good and the quality is top notch. Exactly what I was looking for when searching for a new podcast to get lost in!”
GreenQueen1427 via Apple Podcasts ·
United States of America ·
12/01/22
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“I am a physical therapist in Southern California that specializes in the treatment of hEDS/HSD. I loved the story about Kyle. It’s always shocking to me that no one picked up on the diagnosis earlier. The average time to diagnose is 10-14 years which is totally unacceptable. We are the only...”Read full review »
DaMusicClinic via Apple Podcasts ·
United States of America ·
11/25/22
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“This podcast is fascinating and most importantly, informative. The personal stories are very compelling and interesting. I binged every episode and can’t wait for more!”
JoJo-inSD via Apple Podcasts ·
United States of America ·
11/22/22
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“This is a great show but if one does not know how to spell the diagnosis how can others learn more to see if if it fits themselves. The sickle cell Episode in particular never lists the actual diagnosis anywhere and unless you know how to spell it how can listeners learn more?”
Trackguru87659 via Apple Podcasts ·
United States of America ·
11/21/22
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“If the Hallmark Channel had a medical drama; it’d be this. Saccharine to the point of nauseating.
Almost zero medical information on the conditions. Listened to 3 in a row during a project, hoping it might get better; instead got two back to back stories where the patient’s mom is referred to as...”Read full review »
SnailHugs via Apple Podcasts ·
United States of America ·
11/19/22
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“Neat idea but way too dramatic and overproduced.”
DouKrem via Apple Podcasts ·
United States of America ·
11/19/22
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“I like the premise and the format. I like people talking about their experiences and the experts adding details. I find the events are impactful enough without the distracting intense music. I would recommend using sound effects and music more sparingly. At times I also find the commentary more...”Read full review »
KGRiver via Apple Podcasts ·
United States of America ·
11/18/22
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“Interesting and informative.”
thrashlovers via Apple Podcasts ·
United States of America ·
11/05/22
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“I’m a nursing student and these stories are so interesting and educational. I cant wait to hear more stories”
Zaddddddy via Apple Podcasts ·
United States of America ·
11/05/22
“From a medical professional view, POTS won’t explain a lot of other symptoms: joint pains, migraine, brain fogginess….
Strongly recommend a medical specialist input/editing for episodes prior to publishing”
Mo Shin via Apple Podcasts ·
Australia ·
11/04/22
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“As an RN, I can attest to the fact that there are many patients who present diagnostic challenges to the medical community. This podcast does an excellent job presenting real life situations that puzzled medical professionals. It also demonstrates the importance of persistence in the absence of...”Read full review »
pez1413 via Apple Podcasts ·
United States of America ·
11/01/22
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“I’ve been looking for a show like this for a long time—definitely will keep listening! There’s a good balance of the educational/scientific side of the cases and the emotional/human side. The host is great, as well.”
npdevin via Apple Podcasts ·
United States of America ·
10/25/22
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“As a medical professional it was curious to follow along. HS is very unknown condition I. Hope others learn a lot.”
trichardk via Apple Podcasts ·
United States of America ·
10/22/22
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“I’ve been searching for a podcast like this, it’s interesting and educational all at the same time. Can’t wait for more episodes!”
Super_Sarah via Apple Podcasts ·
United States of America ·
10/19/22
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“This is so sad. Why on earth didn’t she go back to a Dr??? And then Urgent care?? Wow. Just wow. Fascinating but frustrating to hear and feel gut wrenching sadness.”
thongporn via Apple Podcasts ·
United States of America ·
10/18/22
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“Interesting story and I’m so glad that Athena finally got the help she needed. She sounds like a strong person with support from a loving husband. I was disappointed with racism (and age)given as the reason for her late diagnosis with absolutely nothing to back it up. Good journalism would ask...”Read full review »
dgdstuoufx via Apple Podcasts ·
United States of America ·
10/17/22
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