S04E05part 2 - Life Beyond Illness: Jen and Alex Discuss Resilience, Advocacy, and Normalcy with Guests Jen and Alex
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Description
In This episode of Sh!t That Goes On In Our Heads hosts G-Rex and Dirty Skittles are joined by guests Jen and her son Alex for an emotional journey filled with resilience and hope. Join us as we delve into the heartwarming story of Give Kids The World, a charity that creates lasting memories for families with critically ill children, including Jen and Alex. Witness how Alex, a courageous young man with a rare genetic condition, took charge of his health journey from a young age, making decisions about his treatment and standing up for himself. The story deepens as we explore Alex’s life with a chronic illness, witnessing his unwavering determination and the hurdles he has conquered. Discover his early memories, daily challenges, and inspiring resilience, while learning about the support he receives from his brothers and family. In the face of unexpected challenges brought on by the COVID-19 pandemic, Jen shares their experiences and the impact the charity has had on their lives. As the journey unfolds, we hear about Alex’s love for pets, his aspirations, and the life-changing advice he received from his grandfather. We also discuss how Alex found joy despite his medical limitations, his determination to lead a normal life, and his thoughts on marriage and the future. Jen details their experiences within the educational system and the importance of a robust support system and self-care. Tune in to this episode and be inspired by Alex’s courage, resilience, and relentless spirit as he continues to navigate life with grace and hope.
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