EP 301 - Celia is a disabled founder and Investor, a multi-award winning campaigner, lobbyist, researcher and policy designer, advocating for the improvement of disability equity and accessibility inclusivity. We discuss Celia's life long journey with Loeys-Dietz syndrome, and her personal and professional challenges. We talk about the importance of representation, access to benefits, and inclusive policies to advocate for a shift towards normalisation and societal integration of disabled people. We speak about the role of SMEs in fostering inclusivity and how they can become more proactive. We also discuss the necessity for businesses and government bodies to embrace inclusive practices - to consult with disabled representatives for a more equitable and accessible future. Celia also tells us why ineffective consultation qualifies for the big bin of bulls**t Chapters: 00:00 BWB with Celia Chartres-Aris 01:17 Celia's Journey with Loeys Dietz Syndrome 10:10 Challenging Disability Stereotypes 10:47 The Intersection of Disability and Normality 26:24 The World of Work as a Disabled Individual 32:57 Exploring Accessibility and Inclusion Challenges 33:33 Workplace Adjustments and Discrimination 36:19 The Impact of COVID-19 on Work Flexibility 37:18 Unconscious Bias and Disability Representation 39:56 Experiences with Disability and Public Perception 48:20 The Importance of Disability Inclusion in Business 56:04 The Complexities of Disability Support Systems 59:20 Better Disability Awareness and Support 01:04:35 Exploring Toxic Positivity and Its Impact 01:05:06 The Realities of Living with Disabilities 01:06:06 Internalised Ableism and Its Effects 01:06:57 The Healthcare System and Social Perceptions 01:07:39 COVID-19: A Window into the World of Disabilities 01:09:00 Disability Equality and Understanding in Society 01:14:11 The Cost of Living with a Disability 01:20:19 The Importance of Representation 01:24:12 Personal Reflections and Advice for Founders 01:27:17 Quickfire Round: Getting to Know Celia Useful links from Celia: Access2Work Training  Disability Confident Employer Scheme Accessible website widget Disability as employers businesswithoutbullshit.me Follow us: YouTube Instagram TikTok Linkedin Twitter If you'd like to be on the show, get in contact - [email protected] BWB is powered by Oury Clark