Participation and inclusion - Practical lessons from REDRESS
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In this episode, we discuss meaningful participation and inclusion when working with marginalised communities. We draw on research approaches from the Reducing the Burden of Severe Stigmatising Skin Diseases (REDRESS) research programme that aims to reduce illness, stigma, social exclusion, and poverty caused by severe stigmatising skin diseases (SSSDs) in Liberia. Since 2019 REDRESS has been co-developing new knowledge together with researchers, patients and programme implementers that directly respond to priority health needs detailed in the country’s ‘Investment Plan for Building a Resilient Health System’. Hannah Berrian who is a Research Fellow for the Patient Engagement and Person-Centred Approaches thematic area for REDRESS and Shahreen Chowdhury, a researcher and PhD student at the Liverpool School of Tropical Medicine join us in a discussion about participation and inclusion and how these impact the partnerships and power dynamics that exist when trying to improve the health and wellbeing of marginalised people. Episode guests: Miss Hannah Berrian - Research Fellow, UL-PIRE Africa Center Hannah Berrian obtained a Master’s degree in Public Health (MPH) from Cuttington Graduate School of Professional Studies in Liberia. She served as Liberia’s Mental Health Research Capacity Building Coordinator for Youth FORWARD, the U.S.-National Institute of Mental Health (NIMH) funded project from a collaboration between the Boston College of Social Work in Massachusetts, U.S., College of Medicine of the Allied Health Sciences (CoMAS) of the University of Sierra Leone, and UL-PIRE Africa Center at the University of Liberia, respectively. She has several years of professional experience in project management, qualitative and quantitative research, programme implementation, qualitative data analysis, and building capacity for mental health research, among others. Hannah is a Research Fellow for the Patient Engagement and Person-Centred Approaches thematic area on Health Systems Strengthening for Reducing the Burden of Severe Stigmatizing Skin Diseases (REDRESS) consortium. Ms Shahreen Chowdhury - Research Assistant, Liverpool School of Tropical Medicine Shahreen Chowdhury is a social scientist, with a background in public health and geography. She currently works as a research assistant and PhD student at the Liverpool School of Tropical Medicine. She obtained her Masters in Public Health in International Development at the University of Sheffield and has varied local and international NGO experience in diverse settings on community health programmes. Shahreen is particularly interested in the links between equity, mental health and disability inclusion, and community based participatory research. Her PhD explores mainstreaming the rights of people with psychosocial disabilities in Bangladesh, Liberia and Lebanon. In her current work, Shahreen is passionate about using creative participatory methods to amplify the voices and experiences of vulnerable groups affected by chronic illness and disability. Shahreen has extensive experience in working with co-researchers using photovoice, storytelling and art based participatory methods. Shahreen works in Neglected Tropical Disease programmes in West Africa and South Asia with a focus on co-production, designing, implementing and evaluating case detection and community based psychosocial support systems. Useful links: DOWNLOAD A TOOLKIT FOR PARTICIPATORY HEALTH RESEARCH METHODS - Download and access a toolkit of PHR paradigms, methodologies and methods that can be selected and applied by researchers aiming to maximise inclusion, participation, and the achievement of more equitable research partnerships.a...
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