Turning the tables today, where the host, Heather Davies becomes the guest! My special guest Sarah shared her story in the very first episode of the Meniere’s Muse Podcast back in 2022, returns to interview me, so I can finally share my story with you and celebrate one year of the Meniere’s Muse Podcast. It has been such an exciting year, I have met some amazing warriors along the way.  Many I still speak with today. I love the community that has grown from other warriors sharing their...

My special guest today is Lisa, we had such a lovely conversation despite some internet issues on my side, it didn’t stop us from going off topic many times. Before we jump right in, let me share a little about Lisa. Her first symptoms began in 2004, they disappeared until 2019 where she experienced another episode, then was diagnosed in 2021 when the symptoms returned. She longed for information and connection from people living with Meniere's. Over time, she began to understand we can learn...

This episodes conversation is with Kristy Carabello, she lives in Philadelphia with her husband, Nate, and their Cavapoo, Lucy. She was diagnosed with Meniere’s Disease and Vestibular Migraine in 2017. After experiencing 8-10 debilitating vertigo episodes a month, she began tracking her activities on paper noticing trends with her triggers and episodes of vertigo. This compelled her to look for an app to assist with tracking, when she was unable to find one for vertigo, she created one!...

Welcome, in this week's episode I am talking with someone who shares her vestibular journey that started when she was just 18 years old, Julia Savoia. This is art 2 of a two-part special, if you haven't heard the first episode, you may want to go back and listen to that one first.  Let me share a little about Julia. She moved to the U.S. after graduating college in Poland with her Bachelors Degree. Here she met her husband and decided to make the U.S. her, home. Today, she is the mother of...

Welcome, in this week's episode I am talking with someone who shares her vestibular journey that started when she was just 18 years old, Julia Savoia. This is Part 1 of a two-part special of a beautiful conversation.  Before we get started  let me share a little about Julia. She moved to the U.S. after graduating college in Poland with her Bachelors Degree. Here she met her husband and decided to make the U.S. her, home. Today, she is the mother of identical twin 4 year old girls. She was...

Welcome, many of you may have heard his story, at the very least his mission, if not, let me share with you a little about Steve Schwier.  Steve's life as a heavy equipment operator and professional musician came to a screeching halt, when he began experiencing tinnitus in 2011, later being diagnosed with Meniere's in 2012. He had no idea it was the beginning of a new life. A life that is now disabling on many levels. The onset of chronic dizziness, vertigo, nausea, hyperacusis, nystagmus,...

Today I have the pleasure of speaking with Joy and Marissa. They are vestibular migraine patients who met in a support group having an instant connection through the similarities in their journey. Joy and Marissa share the same diagnosis, doctor, and even some of the same meds! Both women had worked prior to their illness and were searching for purpose and wanted to provide other vestibular patients with hope. Joy and Marissa share the same passion to advocate for the vestibular community...

This week I am talking with Veena about her vestibular journey with Vestibular migraine, persistent postural perceptual dizziness that began in 2012. Like many vestibular warriors getting accurately diagnosed was a challenge, especially when her symptoms went away for months only to return stronger after her pregnancy, along with anxiety, depression, loneliness, and disequilibrium. Today, Veena volunteers spreading awareness about vestibular disorders as a VeDA Ambassador and shares her...

This episode will be part two in a 2-part series of a heartwarming conversation with Nicolle about her vestibular journey.  If you haven't heard the first episode, I would recommend listen to that first. Nicolle has partnered with the Hearing Health Foundation and Vestibular Disorders Association (VeDA) where she donates her time and art to benefit their fundraising initiatives. Her fluid abstract works explore the relationship between sound and life, inspired by her sudden unilateral hearing...

This week I’m sharing part one in a 2-part series of a heartwarming conversation with Nicolle about her vestibular journey with Meniere’s, Sudden Sensorineural Hearing Loss (SSHL), BPPV, TMJ and Cervicogenic Dizziness that began in 2017.  Nicolle is a Colombia-American Artist and Hearing Health Advocate based in Miami, Florida. In 2017 she suffered from sudden unilateral deafness and an unexpected incident that led to Meniere’s Disease. Nicolle has partnered with the Hearing Health Foundation...

This week I am talking with Johan, "The Chappiness Guy" about his vestibular journey with PPPD (Persistent Postural-Perceptual Dizziness) and Vestibular Migraines (also called MAV - migraine associated vertigo or migraine induced vertigo).  His journey began 3 years ago at the age of 33. Even though he was diagnosed fairly early in his journey, his symptoms didn’t ease up for many months.  Through his struggles he has found the formula that works for him, he has embarked on a mission as a...

Six years ago Em went through a health crisis after the birth of her second child.  Her symptoms of dizziness, brain fog, derealization, eyes that didn't want to focus, anxiety, vestibular migraines (and more) were a chaotic storm that hit her system.  Her symptoms were 24/7 for close to two years.  Eighteen months into her journey she was diagnosed with vestibular neuritis and vestibular migraines (but also had other labels thrown at her).  She dedicated herself to learning about holistic...

This week I am talking with Dave Giugno, about his vestibular journey with Meniere’s Disease which ultimately led him to a left sided labyrinthectomy. His symptoms began Christmas Eve 2014 and became chronic in 2018. Prior to his vestibular journey he sang baritone in the church choir and was an avid photographer. He has turned a hobby of video editing into a passion project for Menieres patients on his YouTube Vlog titled “Meniere’s Disease Warrior”. He shares openly about his day to day...

This week I am talking with Lara, about her vestibular journey with Labyrinthitis, Vestibular Neuritis and Vestibular Migraine that began after delivering her twin daughters, over twelve years ago. Her symptoms began to increase, and she was experiencing hyperacusis, light sensitivity and small vertigo episodes that got progressively worse over 2 years. Which lead to scary debilitating vertigo, disequilibrium, panic attacks, agoraphobia and like many vestibular warriors’ bouts of depression...

This week I am talking with Amy about her journey with vestibular migraine which began when she was a young girl and became chronic 5 years ago. She has been a personal trainer for over 12 years and feels that continuing her fitness journey helped keep her symptoms under control. She also believes having perseverance to find the right doctor and counselor (cognitive behavioral therapist) is important in everyone's healing journey.  She feels seeing her on a weekly basis helped relieve a lot...

This week my conversation is with Patrick.  Patrick grew up in the town of Durango, CO and currently lives with his wife in Denver. He has worked in the medical device industry throughout his career in both technical and leadership roles as a mechanical engineer and project manager. He’s had the privilege of working alongside amazing development teams in both startup and corporate environments building a variety of products ranging from orthopedic implants/instrumentation and minimally...

This is part two of my conversation with fellow VeDa Ambassador, Alicia Wolf, also known to many as The Dizzy Cook.  If you haven't heard the first episode, I would recommend listen to that first.  She shares about her vestibular journey and publishing her first migraine friendly cookbooks.  This episode is Part 1 in a 2-part series.  Let me tell you a little about Alicia, she is an author at Migraine Again, a trusted website and community for people with migraine and frequent headaches. She...

Today, I am sharing a fantastic conversation with fellow VeDa Ambassador, Alicia Wolf, also known to many as The Dizzy Cook.  She shares about her vestibular journey and publishing her first migraine friendly cookbooks.  This episode is Part 1 in a 2-part series.  Let me tell you a little about Alicia, she is an author at Migraine Again, a trusted website and community for people with migraine and frequent headaches. She is an expert in vestibular migraine and migraine elimination diets. We...

This week I am talking with Kate about her vestibular journey with an acoustic neuroma, also known as a vestibular schwannoma. Katie lives in North Carolina with her family, where she is kindergarten teacher. She hopes one day to follow her passion of becoming a certified language therapist and stepping into her dream as a reading interventionist. She is still learning to balance her dizziness and exhaustion with amazing support from her church, circle of friends and family. If you would...

This week I am talking with Dr. Jessica Pagan about her journey with binocular vision disorder. She has been in the healthcare field for 17 years working as an athletic trainer, specializing in injury prevention and rehabilitation of athletes.   She returned to school, graduating Magna Cum Laude and has been a practicing chiropractor for the past 8 years, when she began having visual disturbances accompanied by anxiety and dizziness. She shares about her vestibular journey in detail on her...

Finding her passion by sharing her story.  This week I am talking with Tammy about her vestibular journey with drop attacks, vestibular migraine, neuritis and Meniere’s disease after a labyrinthectomy. She also shares how finding the right support in a Facebook group helped her feel less alone and changed her life. Finding the support of a vestibular family helped her find her passion for helping others with chronic illness, she connects with others as a Creator on the platform Clapper.  As a...

This week I am talking with Diana about her journey with Vestibular Migraines, as a stay-at- home mother she shares how these disorders affect not only the warrior, they can take an emotional toll on our families as well. She learned that focusing on her passion for make-up and nail art not only propelled her to start a business as professional nail artist, it’s a way for her spend more quality time with her family and allows her to focus on something other than her symptoms. Today Diana...

This week I am sharing about body scan meditations and how it's an easy way to practice mindfulness, relaxation to the body and mind, helping relieve tension, pain, discomfort, anxiety and so much more.  This is such a beneficial tool that many use on a daily basis and one you can take with you anywhere. It's been an absolute blessing to me! Enjoy this month's guided meditation. If you would like more information on vestibular disorders please visit VeDA (Vestibular Disorders Association)....

This week I am talking with Jen, about her vestibular journey, which began 8 years ago.  With her passion to serve others she has been able to find a strength within herself to "get off the couch" and get moving.  Over the last year she has made a commitment to helping others on similar paths by becoming a mental health and fitness coach. She loves encouraging others to give themselves grace while listening to their bodies. She is a VeDA Ambassador and helps raise awareness about vestibular...

This week I am talking with Eugenia about her journey with vestibular migraine and Meniere's disease. She will share her “work-arounds” which are items that she adjusted in her life for more independence. Through these changes she was able to discover many blessings that she may never have encountered was it not for her vestibular dysfunction. She will also be sharing about an exciting new member of her family that will be helping her gain confidence with her mobility challenges.  Thank you...