Pam Cusick is an esteemed research professional with over 30 years of experience in study design, implementation, and analysis. Pam's journey in public health communications and research has been driven by her unwavering passion for patient advocacy, a passion that seamlessly aligns with Rare Patient Voice's mission and vision. As the Senior Vice President of Rare Patient Voice, Pam spearheads initiatives aimed at expanding the organization's panels to encompass all patients and caregivers eager to share their insights and influence their disease categories. Her dedication to amplifying patient voices is evident in her focus on the continued growth and success of RPV. Enthusiastically, Pam engages with patients and caregivers at various conferences and events, where she educates them about Rare Patient Voice's mission. When individuals express uncertainty about the value of sharing their experiences, Pam passionately assures them of the significance of their unique perspectives.  You’ll learn how public health research informs Pam’s advocacy, how patients are empowered by sharing their stories, and why DEI is thriving in healthcare advocacy. LEARN MORE: >>www.rarepatientvoice.com NSLS MEMBERS ONLY: >>Listen to the bonus episode to learn how our community benefits from us all sharing our stories and why clinical research benefits from more inclusivity of patients. (https://thens.ls/3TjhSXt) Mentioned in this episode: Get 20% Off at the NSLS Shop Use code MONDAYS for 20% your entire purchase at shop.nsls.org NSLS Shop