Episodes
Not to put too fine a point on it, but finding out you have Parkinson's can be kind of a big deal. So how do physicians impart that new reality? And how do they maintain their "bedside manner" through the treatment process? The Movers and Shakers are back in the Notting Hill pub, discussing all things to do with how the clinical environment is approached, by practitioners ranging from consultants through to nurses and physios. And they're joined by top guests representing the worlds of...
Published 10/07/23
The Movers and Shakers are back in the pub and this week they're talking about the challenges of deal with Parkinson's while living alone. How much do we rely on others for practical and emotional help? And what services and hacks are available to those without live-in companionship? To help expand their perspectives, Paul ropes in Nick and Sally from the Oxford branch of Parkinson's UK to help shine line on the challenges and solutions. Presented by Rory Cellan-Jones, Gillian Lacey-Solymar,...
Published 09/30/23
Maybe you've just woken up or maybe you're winding down for bed: either way, there's no avoiding the importance of sleep. For the Movers and Shakers it's doubly important. Whether it's parasomnia or sleep apnea, Parkinson's create a range of new challenges to deal with in the slumbering realm. In this episode, they're joined by a leading sleep expert to ask the unfiltered questions about how to get a restful night, deal with such things as dreams are made on, and round it all out with a...
Published 09/23/23
After an eventful summer break – featuring Edinburgh shows, book launches and abortive trips to Colorado – the Movers and Shakers are back in the pub to kick-off a second season of our podcast which tells the truth about living with Parkinson's. In this episode, Rory leads the gang through the technology that's currently – and prospectively – available. From data collection to symptoms mitigation and "cuing", technology can be hugely beneficial to life with PD. But is some of it too good to...
Published 09/16/23
On this special bonus edition of Movers and Shakers – we'll be properly back from summer break in September – Rory Cellan-Jones, Gillian Lacey-Solymar and Paul Mayhew-Archer find themselves in Barcelona for the World Parkinson Congress. From the floor of the conference, the double-barrelled contingent catch-up on a fabulous week in the Catalan city and touch base with a number of inspiring and interesting figures from the Parky world: Neil Russell, Richelle Flanagan, Ray Dorsey, and Matt...
Published 07/08/23
The Movers and Shakers are gathering in the Notting Hill pub for once last hurrah (at least for this current season) and a rummage in the mailbag. We'll be answering listener questions and delivering your feedback about what we've got right (and wrong) over the course of Season One. But don't worry, even though the Movers and Shakers are taking the summer off to recharge the batteries, they'll be back in September for a brand new series, and, to kick it all off, a live episode from Middle...
Published 06/03/23
The Movers and Shakers are back in the Notting Hill pub, and this week we're talking about quite possibly the biggest question in the world of Parkinson's: will we get a cure? To assist with answering this ultimate enquiry, the gang are joined by Prof Tom Foltynie, a neurologist at the bleeding edge of PD research, and Will Cook, CEO of the aptly named charity Cure Parkinson's. Is there hope for a cure? What form could it take? And what timeframe might we see it in? Presented by Rory...
Published 05/27/23
The Movers and Shakers are back and they're talking about one of the lesser discussed, non-motor, symptoms of Parkinson's: depression. If the frustrations of the conditions weren't bad enough, many suffers also experience debilitating issues with their mental health. So how can we combat this and prove that life with Parkinson's is not only liveable, but enjoyable? The gang are joined in the Notting Hill pub by a special guest, expert in psychological conditions, to discuss. Presented by Rory...
Published 05/20/23
The Movers & Shakers are back in the Notting Hill pub for their most rock'n'roll episode yet. That's right, we're talking about drugs. From dopamine replacements to agonists, via a lot of a rattling, the gang want to find out more about what they're taking, why they're taking it, and whether it's really making a difference. To help with that, we're joined by Professor Ray Chaudhuri, neurologist and professional judge wrangler, and Stephanie Bancroft, pharmacist to the stars. Presented by...
Published 05/13/23
What do the Movers & Shakers know about the world of work? Well, quite a lot it turns out. Ably assisted on this episode by Guy Monson, we're turning our attention to managing your professional life after the Parkinson's diagnosis. Can you continue to work? What accommodations can be made? What legal protections are available? And what do you do if it all feels a bit too much? All that, and a couple of special guests in the Notting Hill pub. With Rory Cellan-Jones, Gillian Lacey-Solymar,...
Published 05/06/23
This week on Movers and Shakers we're talking about nature's remedy: exercise. The Notting Hill pub where we gather is a rather sedentary place, but the gang get up to all sorts. From windsurfing and horse riding to tennis, boxing and tai chi, exercise can make all the difference. But how do you motivate yourself? What are the real impacts of exercise on the human brain? And how long can a Judge hold a plank? With Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir...
Published 04/29/23
The Movers and Shakers are back in the Notting Hill pub, and this week they're joined by an illustrious guest. Professor Ludvic Zrinzo is a world renowned specialist in Deep Brain Stimulation (DBS) and, in her own words, the "only man to have been been inside [Gillian's] brain". DBS is an exciting but often misunderstood treatment in the world of Parkinson's care, and the gang are going to put Prof Zrinzo under the microscope. Who is right for DBS? Are there symptoms it won't help? And why...
Published 04/22/23
This week we're talking about coping. How did you cope with your diagnosis? How do you cope with the condition itself? How do your family and friends cope with the onset of symptoms? And we'll also be finding out one of the most important questions to face our panel: who's a mover and who's a shaker? With Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn, and Jeremy Paxman. Produced and edited by Nick Hilton for Podot. Music by Alex...
Published 04/15/23
This week, as a little Easter treat, we're shaking the mailbag at the pub, and the Movers and Shakers are reading your letters! The response to the first few episodes of the podcast has left everyone overwhelmed – and we wanted to take a moment to reflect some of the correspondence we've had over the past few weeks. Please do get in touch via [email protected] (and make sure to leave your name, if you want to, so we can shout you out on a future mailbag episode). Presented...
Published 04/08/23
The Movers and Shakes – Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman – are back in their Notting Hill pub. And this week, they're joined by two special guests: Gaynor Edwards, from Spotlight YOPD, and Deborah Carnwath. We're talking Young Onset Parkinson's, the special form of the condition that affects people under-50. Which of the Movers and Shakers falls into this special category? How do you fix a missing appendix? And...
Published 04/01/23
The gang – Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn, and Jeremy Paxman – are back in the pub in Notting Hill to talk about life with Parkinson's. This week, they're looking at the stories of their diagnoses: the good, the bad, and the ugly. How does it feel to hear those words "you have Parkinson's"? And how to family and employers react? Is it easy, or even possible, to find support structures in the hard-to-navigate world of...
Published 03/25/23
In a quiet back corner of a pub in leafy Notting Hill, six friends share a drink and their experiences of life. They are the Movers and Shakers: Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn, and Jeremy Paxman. They are united by two things: their fascinating and wide-ranging careers, and having Parkinson's disease. In this first episode of Movers and Shakers, the gang introduce themselves and their experiences with the condition. Honest yet...
Published 03/18/23
Movers and Shakers is a new podcast about life with Parkinson's! Each week, our stellar cast of Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman will be gathering in a Notting Hill pub to discuss the highs and lows, trials and tribulations, of living with the condition. Subscribe now to get new episodes as they drop. Movers and Shakers is kindly sponsored by Boardwave. With Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell,...
Published 03/15/23