'I don't know how much pain I'm in'
Listen now
Our podcast host Jamie attended A&E three times recently with excruciating pain but because he couldn't describe it, he was sent home. Autistic people often can't explain severity or location of discomfort and he was only admitted to hospital when outward signs, screaming and black-outs, showed it was serious. It's now thought that Jamie had sepsis and, when he stopped being able to walk, they began to realise he has a spinal injury. We discuss what could have been done differently and Jamie's assistant Oli describes the system he has designed to help autistic people communicate pain. With Robin Steward and Jamie Knight Produced by Emma Tracey. Subscribe on BBC Sounds or say to your smart speaker "ask the BBC for 1800 seconds on autism" email [email protected]
More Episodes
Melissa Simmonds is black and autistic, as are her children. In this episode she talks about the anxiety she feels when her 16-year-old stims in public, and what he might do if stopped by police. How would you feel if a builder arrived an hour earlier than expected? Listener Daisy was...
Published 06/25/21
This is the one where we get through some of your emails. Jamie describes how it feels when the "mouth words" won't come. Robyn explains why wearing her favourite jumper to a medical appointment helps "cocoon" her from what's happening and how a whiteboard beside her front door helps to...
Published 05/26/21
There is no episode this month but we’ll be back soon. Jamie has been very unwell over the last few weeks, leading to A&E visits and hospital stays. He is doing much better now though, recovering at home and managing his energy levels. We’ve spoken before on the podcast about how tricky...
Published 03/25/21