Our theme this month is “The Life I Choose.”  So often, with a chronic condition, it can feel like nothing is within our control.  That can be challenging physically, mentally, emotionally. Our stories this month dive into those challenges, as well as the empowerment that comes by taking charge of the things we can control.  By reminding ourselves of the ways we can live the life we choose.   Program Notes: Want to follow more of our Journeys? Subscribe here!    BloodStream Journeys is...

Nicole Angeles might be a name some of you recognize.  She’s been a contributor here before, and has been very open with her vWD Journey, particularly as it related to becoming a mother.  This month we take a deep dive into Nicole’s story, hearing from her at three extremely pivotal points along the way. It’s One Woman’s Journey that contains lessons for all of us about persistence, advocacy and courage.    Program Notes: Want to follow more of our Journeys? Subscribe here!    ...

This month’s episode features the stories of community members who have been through the ringer with health and personal challenges, but somehow through it all they were able to listen to that little voice inside that told them to Get Back Up.   Program Notes: Want to follow more of our Journeys? Subscribe here!    BloodStream Journeys is exclusively sponsored by BioMarin: www.biomarin.com   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on...

On July 31st, something happened in the hemophilia community that had never happened before.  A group of teens came together to perform a musical about hemophilia on - where does everything in our life happen these days? You guessed it. ZOOM!  This month’s episode features the first-hand experiences of three of those inspiring young people.   Program Notes: Want to follow more of our Journeys? Subscribe here!    BloodStream Journeys is exclusively sponsored by BioMarin:...

Early adolescence is such a vulnerable and formative time, and the things we go through often shape the way we approach the rest of our life - for better or worse.  This month’s episode features 3 stories that are quite varied, but share one strong common thread: a life-changing experience at the age of 12.   Program Notes: Want to follow more of our Journeys? Subscribe here!    BloodStream Journeys is exclusively sponsored by BioMarin: www.biomarin.com   Connect with BloodStream...

In a lot of ways, it feels like the whole world is at a standstill.  We can’t make plans, we can’t see loved ones, it’s almost like we’re frozen in place. But this month’s episode is a great reminder of how we can safely move forward while standing still. Our 3 contributors are finding ways forward through this dark time, moving towards the light while sheltering in place.   Program Notes: Want to follow more of our Journeys? Subscribe here!    BloodStream Journeys is exclusively...

This month we hear from 3 young men who have accomplished incredible things Against All Odds.  Their Journeys from child to young adult have shattered the expectations of what many might think possible, and remind all of us that we’re capable of much more than we may sometimes believe.     Want to follow more of our Journeys? Subscribe here!    BloodStream Journeys is exclusively sponsored by BioMarin: www.biomarin.com   Connect with BloodStream Media: Find all of our bleeding...

This month we take a deep dive into the long and complicated history of factor within our community, with a specific focus on the Contamination Crisis of the 1980s.  Compiled from over 40 interviews conducted by us and our collaborators at the HIV story project, with excerpts from the film ‘Bad Blood’ and from news articles and reports over the last 60 years.   Want to follow more of our Journeys? Subscribe here!  BloodStream Journeys is exclusively sponsored by BioMarin: www.biomarin.com ...

This month we hear from 3 incredible people who have gone to extraordinary lengths to ensure the safety and security of their child. From embracing the unknown of a radical clinical trial to moving thousands of miles for better care, these 3 stories demonstrate the lengths a parent will go to when the wellbeing of their child is at stake. Program Notes: Want to follow more of our Journeys? Subscribe here!  BloodStream Journeys is exclusively sponsored by BioMarin:...

Three women, with three points of view from three different countries: the US, Great Britain and Israel.  But one thing they shared? They all were able to approach their situation with a degree of humor. As mothers, daughters, and individuals - that sense of humor, ranging from laugh out loud to just an air of lightness, seems to make their load a bit more manageable.     Program Notes: Want to follow more of our Journeys? Subscribe here!    BloodStream Journeys is exclusively sponsored...

When you or a loved one has a chronic health condition, it can often feel like your entire world revolves around that condition - from your social circles to your career, everything is impacted. On this episode of BloodStream Journeys, Rose Bender, Rick Starks and Jonathan Hill share stories about branching out of what can feel like that core identity, and finding other elements of identity that can be empowering, comforting, strengthening and even life-changing. Want to follow more of our...

The Moment. Of. Decision. This month we have three community stories that all come down to a MOMENT. That single, fraction of a second where you could go right or left, up or down, repeating the mistakes of the past or ripping open a brand new future for yourself and those you love. On this debut episode of BloodStream Journeys, bleeding disorder community members Ivan Gorin, Vanessa Flora and Tyshawn Constantine share with us those moments from their own lives, after which they were never...