Episode 363: COVID Diary Part 2
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Description
I'm continuing to talk about my experience with COVID. I have something like 6 autoimmune disease from Sjogren's to Polymyositis. The most threatening with COVID is having Pulmonary Fibrosis (related to antisynthetase syndrome). This lung disease means that my lungs are progressively turning themselves into scar tissue. Contracting COVID was scary. Therefore, it is miraculous that I came through it. On about the 2nd day, having been in contact with my doctors, I got on antivirals. However, because of some of the pain meds I take, and because of my blood thinners, I could not take Paxlovid. I got put on Molnupiravir. Less effective than Paxlovid, Monupiravir is still saving lives. When I am at my most sick, I prioritize my medications. Monupiavir was 4 capsules 2x/day. I take 33 pills per day and when feeling nauseated, or feeling my crappiest, I prioritize my highest value meds and take out some of the things I can live without for a couple of days and swallow a fewer pills for a couple of days. At this point my dry cough had given away to wet cough and found that Sudafed was helpful. My oxygen saturation was dropping and the danger zone is when you get below 88%. Thankfully, I have an oxygen concentrator and liquid oxygen available at home. After the first few days the vomiting stopped but the nausea and intestinal symptoms continued. The pain in my body felt a lot like a fibromyalgia flare. What's dangerous about having a serious illness (an accident, times of great stress) is that our autoimmune conditions are likely to start relapsing. So COVID becomes dangerous on these other fronts. Also, ALL of my chronic illnesses began with an EBV infection so I know that I'm prone to post-viral infections. I always assumed that I'd be a candidate for long COVID. I'll talk more about my experiences in coming days and weeks about my COVID experiences. How about you -- have you had COVID? Avoided it? Had it more than once? How has it interacted with/impacted your other illnesses? Please comment! I'm Annette Leonard, speaker, coach, and sick person who believes that my illnesses do not define me. If health is the absence of disease and wellness is the presence of wholeness, then no matter what your disease status, we can work toward your wellness, your wholeness. Whether or not you are ever "healthy" on paper, you can be well. Join me and others on the path back to wholeness at AnnetteLeonard.com. Whether you are a person experiencing chronic illness or are someone who loves or serves people with chronic illness I have great resources here on this channel or on my website for you.
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