Episodes
Hear about ways of measuring epilepsy surgery success, risks, and managing expectations. With neurosurgeon Luke Tomycz.-----------------------------------------๐Ÿ”— Website, transcript, and more about Luke: ๐Ÿ‘‡๐Ÿปhttps://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-epilepsy-surgery-success-measurement-engel-class ย  ----------------------------------------- Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป...
Published 01/25/24
Learn about epilepsy surgery and potential benefits and risks - from epilepsy neurosurgeon of the Epilepsy Institute of New Jersey: Luke Tomycz. ------------------------------------------ ๐Ÿ”— Website, transcription, and more about Luke: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-safety-efficacy-epilepsy-surgery ----------------------------------------- Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป...
Published 01/18/24
Brain tumours commonly cause epilepsy. Learn more about research into this and Brain Tumour-Related Epilepsy, today with Mark Cunningham of Trinity College Dublin. ------------------------------------------ ๐Ÿ”— Website & more about Mark: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/mark-cunningham-brain-tumours-tumors-epilepsy ----------------------------------------- Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป...
Published 01/11/24
Could the amygdala be responsible for lack of air hunger and SUDEP? Learn about the research from neurosurgeon and researcher Brian Dlouhy. ------------------------------------------ ๐Ÿ”— Website & more about Brian: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/brian-dloughy-lack-air-hunger-sleep-apnea-amygdala-sudep ----------------------------------------- Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป...
Published 01/04/24
Epilepsy Specialist Nurses provide a key part of the care package for people with an epilepsy. Hear of the value of flexibility and going above and beyond required, by Neil Williamson. ------------------------------------------ ๐Ÿ”— Website & more about Neil: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/neil-williamson-being-an-epilepsy-nurse ----------------------------------------- Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป...
Published 12/28/23
A compound designed to treat prostate cancer appears to be effective in treating temporal lobe epilepsy in rodents - including the cognitive and psychiatric aspects so commonly accompanying seizures! Hear more from Pablo Casillas-Espinosa! ------------------------------------------ ๐Ÿ”— Website & more about Pablo: ๐Ÿ‘‡๐Ÿป www.torierobinson.com/epilepsy-sparks-insights/pablo-casillas-espinosa-sodium-selenate-temporal-lobe-epilepsy ----------------------------------------- Donโ€™t understand all the...
Published 12/21/23
Hear about developments in seizure forecasting (using AI & machine learning), the benefits to people with epilepsy, trust, and managing expectations. With Clinical Support Scientist at the Mayo Clinic: Ben Brinkmann. ------------------------------------------ ๐Ÿ”— Transcription & more about Ben: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-machine-learning-ai-forecast-prevent-seizuresย  ----------------------------------------- Donโ€™t understand all the terms...
Published 12/14/23
Exciting neuroimaging techniques are getting out there to help more and more people become seizure-free. Hear more about the latest from clinical support scientist Ben Brinkmann. ------------------------------------------ ๐Ÿ”— Website & more about Ben: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-latest-ways-scan-brain-mri-eeg-mag-magnetoencephalography-7tesla-mri ----------------------------------------- Donโ€™t understand all the terms used? Check out the Epilepsy...
Published 12/07/23
Magnetoencephalographies - or MEGs - are brain scans with a very high sensitivity and are a distinct complement to EEG and MRI scans in preparation for epilepsy surgery. Hear all about them now from the expert in biosignal analysis: Stefan Rampp. ------------------------------------------ ๐Ÿ”— Website & more about Stefan:...
Published 11/30/23
Hear how somatic gene mutations can lead to an epilepsy and how this is being researched by lead clinician scientist of the University of Calgary: Karl Martin Klein. ----------------------------------------- ๐Ÿ”— Website & more about Karl Martin: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/karl-martin-klein-epilepsy-via-somatic-gene-mutations ---------------------------------------- Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป...
Published 11/23/23
Hear how the conflict in Palestine is impacting the thousands people with epilepsy in Palestine - but how support from around the world is making a difference - with our return-guest, epileptologist Omar Danoun ุฏ. ุนู…ุฑ ุฏู†ูˆู†.. ------------------------------------------ ๐Ÿ”— Website & more about Omar: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/omar-danoun-epilepsy-israel-palestine-gaza-crisis ----------------------------------------- Donโ€™t understand all the terms used? Check out...
Published 11/20/23
Epilepsy Specialist Pharmacist Trudy Thomas explains the incredible value of an Epilepsy Specialist Pharmacist, managing โ€œA wonky stoolโ€, and how and why other non-specialist pharmacists should learn more about the epilepsies. ----------------------------------------- ๐Ÿ”— Website & more about Trudy: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/trudy-thomas-epilepsy-specialist-pharmacists-value ----------------------------------------- Donโ€™t understand all the terms used? Check...
Published 11/16/23
Raising awareness of epilepsy amongst everyone for Epilepsy Awareness Month - through events and just chatting! With epileptologist Meriem Bensalem-Owen. ------------------------------------------ ๐Ÿ”— Website & more about Meriem: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/meriem-bensalem-owen-epilepsy-awareness-month-being-involved ----------------------------------------- Chapters ๐Ÿ“– 00:00 Meet Meriem 02:27 Why focus on the epilepsies? 03:54 Promoting epilepsy awareness...
Published 11/09/23
Learn how funds are generated for the care of children with an epilepsy, fun times, and how itโ€™s crucial to work with the whole family - with peadiatric neurologist and secretary of ILAE YES, Eugenia Roza, Romania. ------------------------------------------ ๐Ÿ”— Website & more about Eugenia: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/eugenia-roza-epilepsy-fundraising-for-care-romania ----------------------------------------- Donโ€™t understand all the terms used? Check out the...
Published 11/02/23
Biochemist Matt Gentry shares with us his extensive research into the ultra-rare epilepsy Lafora Disease, his motivation from working with families, the brilliant work of the Lafora Disease charity Chelseaโ€™s Hope, and support from both the NIH and the Chan Zuckerberg Initiative. ------------------------------------------ ๐Ÿ”— Website & more about Matthew Gentry:...
Published 10/26/23
Learn about SUDEP (Sudden Unexpected Death in Epilepsy), SUDEP Action Day (18th Oct 2023), minimising risks, and saving lives! With Sammy Ashby of SUDEP Action. ------------------------------------------ ๐Ÿ”— Website & more about Sammy Ashby: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/sammy-ashby-saving-lives-sudep-action-day ----------------------------------------- Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป...
Published 10/19/23
Exposure to nature: plants, water noises, and more, are proven to be of distinct benefit to human health. Epileptologist, Elisabeth Doran from St. Jamesโ€™s Hospital in Ireland explains the benefits of exposure to nature for those with an epilepsy. ------------------------------------------ ๐Ÿ”— Website & more about Elisabeth Doran: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/elisabeth-doran-nature-treatment-for-epilepsy ----------------------------------------- Donโ€™t understand...
Published 10/12/23
Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected, with Berge Minassian. ------------------------------------------ ๐Ÿ”— Website & more about Berge: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/berge-minassian-lafora-diseaseย  ----------------------------------------- Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป...
Published 10/05/23
Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the exciting research taking place to try and improve and save the lives of the children affected. With global lead researcher Jordi Duran. ------------------------------------------ ๐Ÿ”— Website & more about Jordi: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/jordi-duran-lafora-diseaseย  ----------------------------------------- Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary!...
Published 10/03/23
Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected. With lead epileptologist and researcher Josรฉ Serratosa of the Hospital Universitario Fundaciรณn Jimรฉnez Dรญaz, Madrid, Spain. This is the first of 3 of our episodes re the ultra-rare genetic epilepsy: Lafora Disease. ------------------------------------------ ๐Ÿ”— Website & more about Josรฉ:...
Published 10/01/23
Hear of research into complex refractory & super refractory status epilepticus; treatments, outcomes, & how to improve each - with Christoph Beier. ------------------------------------------ ๐Ÿ”— Website & more about Christoph Beier: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/christoph-beier-status-epilepticus-complexities-outcomes ----------------------------------------- Donโ€™t understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐Ÿ‘‡๐Ÿป...
Published 09/28/23
Learn of studies on the accurate prediction of seizure propagation and how identifying this for each person with an epilepsy can assist in more effective treatment - e.g. in presurgical workup, and more - all with biomedical engineer and neuroscientist Christina Maher from the University of Sydney. ------------------------------------------ ๐Ÿ”— Website & more about Christina Maher:...
Published 09/21/23
Signs of focal epilepsy before the seizures start: hear all about it from epileptologist Jacob Pellinen, who shares with us his research and results proving that people can experience things like depression or learning difficulties at school or work before seizure onset. ------------------------------------------ ๐Ÿ”— Website & more about Jacob:...
Published 09/14/23
Did you know that seizures and epilepsy can be part of an autoimmune disorder? E.g. Lupus, Coeliac disease, or Crohn's disease? Hear all about it from neurologist & epilepsy specialist Lucas Gabriel Orellana. ---------------------------------------- ๐Ÿ”— Website & more about Lucas: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/lucas-gabriel-orellana-epilepsy-systemic-autoimmune-disorders ---------------------------------------- Donโ€™t understand all the terms used? Check out...
Published 09/07/23
Stigma is to be challenged through education. Gabriela Reyes Valenzuela, a peadiatric epileptologist from Argentina explains her invaluable training regarding epilepsy provided to influential community leaders. ------------------------------------------ ๐Ÿ”— Website & more about Gabriela: ๐Ÿ‘‡๐Ÿป https://www.torierobinson.com/epilepsy-sparks-insights/Gabriela-Reyes-Valenzuela-epilepsy-stigma-eradicating-latin-america ----------------------------------------- Donโ€™t understand all the terms used?...
Published 08/31/23