Hear about Autoimmune-Associated Epilepsy and the intersection between epilepsy and immunology - in part 1 of 2 with epileptologist Claude Steriade from NYU Langone Health Epilepsy Center! Claude explains the causes, mechanisms, and impacts of Autoimmune-Associated Epilepsy upon people's lives, plus, how crucial early diagnoses and intervention are. ------------------------------------------ 🔗 Transcription & more about Claude:...

Mark Cook and Torie discuss the significant improvements in epilepsy treatments over the past few decades - thanks to technologies like MRI and genetics. Mark also explores the issue of overreporting and underreporting of seizures by patients and the potential of ambulatory EEG monitoring and big data analysis to provide a more accurate understanding of seizure activity which can lead to both improved treatments and improving peoples’ quality of...

Deb Pal and Paul Gringras discuss their research on the links between sleep and seizures in epilepsy; sharing their work on the CASTLE project, which aims to improve sleep and Quality of Life for children, young people, and families affected. They discuss both their app called COSI - which provides evidence-based sleep interventions for parents, and the upcoming CASTLE conference, where they shall disseminate  their research findings and discuss the importance of personalised approaches to...

What should someone do if interested in adopting the ketogenic diet or looking further into "metabolic psychiatry"? Hear about sacrifices, benefits, weight loss, constipation, nutrition, and having the right support. All in part 3 of 3 with the “pharmacist who gave up drugs”, Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham:...

Learn of the evolution of the ketogenic diet, metabolic psychiatry, the treatment overlap between different diagnoses (e.g. the epilepsies and mood disorders), recommended reads, and the cognitive dissonance of many regarding the ketogenic diet. This is part 2 of 3 with the Pharmacist Who Gave Up Drugs: Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham:...

The Pharmacist Who Gave Up Drugs introduces us to the impacts of the western diet on our health, quality of life, life expectancy - and the potential benefits of the ketogenic diet - in part 1 of 3: Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-ketogenic-diet-pharmacist-part1 ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy...

M. Scott Perry explains how Epilepsy Researchers require intros and support to be the best that they can be and initiate, manage, and see results. It’s possible through the Pediatric Epilepsy Research Consortium (PERC). ------------------------------------------ 🔗 Website & more about Scott: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/m-scott-perry-pediatric-epilepsy-research/consortium ----------------------------------------- Don’t understand all the terms used? Check out...

Hear about research into a new way of inhibiting temporal lobe seizure activity through GABAergic interneuron cell therapy! With epileptologist and neuroscientist David Spencer. ------------------------------------------ 🔗 Website & more about David: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/david-spencer-preventing-seizures-using-stem-cells  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻...

It's wild: when clinicians mistake an epilepsy (caused by a brain tumour!) for menopause! Or, when a parent doesn't believe that their daughter could have an epilepsy...! Why aren't organisations and governments promoting epilepsy awareness as well as they do stroke and MS?! Tune in to hear all about it from leading epilepsy specialist: Jacqueline French. ------------------------------------------ 🔗 Website & more about Jacqueline:...

Hear about the one-of-a-kind 6th Dianalund International Conference on Epilepsy in May 2024 - with lead genetic clinicians and researchers Elena Gardella, Rikke Møller, and Guido Rubboli. ------------------------------------------ 🔗 Website & more about Elena, Rikke, and Guido: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/6th-dianalund-international-conference-epilepsy-genetics-denmark-elena-gardella-rikke-moller-guido-rubboli ----------------------------------------- Don’t...

5% of a cohort* had at least 1 car accident (and up to 3) before their epilepsy diagnosis! Hear about the global Human Epilepsy Project by Jacqueline French and learn how seizures can present in so many different ways! *450 people ------------------------------------------ 🔗 Website & more about Jacqueline: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jacqueline-french-human-epilepsy-project ----------------------------------------- Don’t understand all the terms used? Check...

Do Autism & Intellectual Disability Come With Epilepsy? Learn of the Epilepsy, Autism and Intellectual Disability “triad” - studied by clinician scientist, epileptologist: Vaishnav Krishnan. ------------------------------------------ 🔗 Website & more about Vaishnav: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/vaishnav-krishnan-epilepsy-autism-intellectual-disability-triad  ----------------------------------------- Don’t understand all the terms used? Check out the...

Learn of the huge reduction in seizures amongst adults with the epilepsy Lennox-Gastaut Syndrome - as the result of DBS! With Linda Dalic. ------------------------------------------ 🔗 Website & more about Linda: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/linda-dalic-stimulating-brain-reduce-seizures-neuromodulation ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻...

Hear about the origins of Purple Day, its purpose, the positivity and how to make a difference! With founder: Cassidy Megan!! We talk about how Purple Day was founded, Cassidy's personal epilepsy diagnosis, school, stigma, the diversities of the epilepsies, SUDEP, varying cultural experiences, media portrayals, credible sources of information, and brilliant clinicians!  ------------------------------------------ 🔗 Website & more about Cassidy:...

Brain, Skull, And Neck Implants For Epilepsy?! What's the epilepsy treatment called VNS? Or DBS? Or RNS?! Learn about these cool neuromodulation treatments that can help to prevent and/or control epileptic seizures (!) with star epileptologist Anna Bochenek. ------------------------------------------ 🔗 Website & more about Anna: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/anna-bochenek-neuromodulation-vns-dbs-rns ----------------------------------------- Don’t understand all...

Brain tumours vary greatly and 30% of them cause an epilepsy to develop - hence the name Brain Tumour Related Epilepsy. Hear more for Brain Tumour Awareness Month from cancer neuroscientist: Kate Connor. ------------------------------------------ 🔗 Website & more about Kate: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/kate-connor-epilepsy-brain-tumours-awareness-month ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks...

Surprising and exciting rare epilepsy (STXBP1) research discoveries that have led to the enhancement of excitatory synapses as a proposed treatment - by Jean-François Perrier of the University of Copenhagen, Denmark. ------------------------------------------ 🔗 Website & more about Jean-François: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jean-francois-perrier-STXBP1-excitatory-inhibitory-synapses ----------------------------------------- Don’t understand all the terms...

Could we accurately predict epileptic seizures using AI? How accurate do predictions need to be? How cool to use do devices need to be?! Could seizure forecasting reduce injuries, decrease mortality, and improve people’s quality of life? Hear all about it from neurologist: Daniel Goldenholz. ------------------------------------------ 🔗 Website & more about Daniel:...

How useful is and can AI be in helping people with an epilepsy? How safe it it? What are the biases to be challenged and the ethics to be followed? Hear answers from Daniel Goldenholz of Harvard Beth Israel Deaconess Medical Center. ------------------------------------------ 🔗 Website & more about Daniel: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-ai-safety-ethics-biases ----------------------------------------- Chapters 📖 00:00 Clip & intro 00:59 Meet...

“Epilepsy is not only a disease, epilepsy is a symptom of a brain disease. And brain health is everything, belongs to everybody!” Learn more of from and hear of the exciting, upcoming Kuopio Epilepsy Symposium in March 2024 - with exciting lead neurologist, researcher, and world-changer: Reeta Kälviäinen. ------------------------------------------ 🔗 Website & more about Reetta:...

Hear all about International Epilepsy Day, the needs of those affected by the epilepsies, eradicating stigma, treating and preventing epilepsy, and hope for the future; all with global lead Helen Cross. ------------------------------------------ 🔗 Website & more about Helen: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/helen-cross-international-epilepsy-day ----------------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks...

For Children's Mental Health Week meet Kirsten McHale who shares the complex needs of many children with an epilepsy, how their needs are not being met (in the UK), and how services must be improved. ------------------------------------------ 🔗 Website & more about Kirsten: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/kirsten-mchale-real-needs-children-with-epilepsy ----------------------------------------- Children's Mental Health...

Why are only a small percentage who’d benefit from epilepsy surgery getting it? Hear from neurosurgeon Luke Tomycz of the Epilepsy Institute of New Jersey.------------------------------------------ 🔗 Website, transcription, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-why-arent-more-people-having-epilepsy-surgery ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻...

Hear about ways of measuring epilepsy surgery success, risks, and managing expectations. With neurosurgeon Luke Tomycz.-----------------------------------------🔗 Website, transcript, and more about Luke: 👇🏻https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-epilepsy-surgery-success-measurement-engel-class   ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻...