Episodes
Being a podcaster can be a lonely life. So what better way to begin the holiday celebrations than getting some of your favorite MSers together to talk about our plans for the season? Full show notes and resources at https://fumsnow.com/fums119/
Published 11/22/22
Brooke Pelczynski is an artist, illustrator, and comic-creating Multiple Sclerosis fighter. Her life is an inspiring example of someone taking their diagnosis and turning it into something great. Most recently, her varied career has led to her working for Marvel Comics! Full show notes and resources at https://fumsnow.com/fums118/
Published 11/01/22
50% of all people with MS will have at least one clinically significant episode of depression. Dr. Anthony Feinstein is a Professor of Psychiatry and is here to discuss cognition and mood, the hidden symptoms of MS that can add to the disability associated with the disease. Full show notes and resources at https://fumsnow.com/fums117/
Published 10/18/22
Jenn Powell is an active advocate in the MS community, imparting her hopeful optimism to the real-life challenges facing those of us living with MS. Now with secondary-progressive MS, Jenn continues to better the lives of our community. Full show notes and resources at https://fumsnow.com/fums116/
Published 10/04/22
Sue Casey has been living with MS for nearly 50 years, which means that she was diagnosed in a time before MRIs and DMTs. But, despite the progression of her MS, Sue has lived a full and happy life and has learned to appreciate the small things. Full show notes and resources at https://fumsnow.com/fums115/
Published 09/20/22
Artist and Multiple Sclerosis advocate Lydia Emily Archibald is the subject of the recent documentary The Art of Rebellion, a feature-length film directed by Libby Spears. I think she is an amazing person, living an amazing life, and I'm sure you'll agree. Full show notes and resources at https://fumsnow.com/fums114/
Published 09/06/22
Dr. Terry Wahls is carrying out a long-form study - entitled Efficacy of Diet on Quality of Life in Multiple Sclerosis - which examines how a participant's Quality of Life is affected by one of three very different diets - Ketogenic, Modified Paleolithic, and usual diet. And YOU could take part! Full show notes and resources at https://fumsnow.com/fums113/
Published 08/23/22
Mariska Breland tried Pilates after being diagnosed with MS at the age of 27. She eventually began teaching it, ultimately turning it into her full-time job, and has created multiple neuroscience and exercise workshops, including Pilates for MS. Full show notes and resources at https://fumsnow.com/fums112/
Published 08/09/22
When I was diagnosed with MS, what I really needed was an operator's manual. But that doesn't exist, right? Well, Debbie Petrina is the author of "Managing MS: A Roadmap to Navigate MS", a practical, easy-to-read handbook about understanding and managing MS. Full show notes and resources at https://fumsnow.com/fums111/
Published 07/26/22
One exciting area of Multiple Sclerosis research is the use of diet and lifestyle as a way to manage the disease. And if you've been researching this for any time, you’ve probably heard about Intermittent Fasting (IF). In this episode, Cynthia Thurlow explains what IF is, its effect on her own health, and the types of fasts that are available. Full show notes and resources at https://fumsnow.com/fums110/
Published 07/12/22
When Jon Strum's wife, Jeanne, was diagnosed with Progressive MS, he stopped working to become her carer and advocate. He launched the Real Talk MS podcast in 2017 to bridge the gap between patients and caregivers and the scientific community. It has now been downloaded more than 1,000,000 times by listeners around the world. Full show notes and resources at https://fumsnow.com/fums109/
Published 06/28/22
In January of 2022, one of the biggest MS news stories EVER was announced - that MS is probably caused by infection with the Epstein-Barr virus (EBV), according to a study led by Harvard T.H. Chan School of Public Health researchers. My guest today is Kjetil Bjornevik, the lead author of the publication that got us all excited. Full show notes and resources at https://fumsnow.com/fums108/
Published 06/14/22
Jenna Green is a patient advocate, content creator, consultant, and public speaker. She has used her 15 years of marketing experience to help bring awareness, support, education, and community to those who live with invisible illnesses, chronic pain, and fatigue. Full show notes and resources at https://fumsnow.com/fums107/
Published 05/31/22
Elizabeth Miller is a family caregiver, speaker, author, podcast host, and Certified Caregiving Consultant. Her aim is to make caregiving sustainable and prevent burnout by encouraging intentional self-care. Full show notes and resources at https://fumsnow.com/fums106/
Published 05/17/22
Delaney Parker is an author who was diagnosed with Multiple Sclerosis in October of 2008. It was her diagnosis that inspired Delaney to write “Grace.” Full show notes and resources at https://fumsnow.com/fums105/
Published 05/03/22
Identical twins Tamara Kahn and Terry Hord (née Harber) were born eight minutes apart and were both athletic as children. But they can now look back and see the fatigue and heat sensitivity they both experienced as early signs of the diagnosis to come - along with the trauma of losing their mother to cancer and the Epstein-Barr Virus that they contracted at the age of 15. Full show notes and resources at https://fumsnow.com/fums104/
Published 04/19/22
r. Terry Wahls has been studying the links between lifestyle and MS outcomes since getting her first symptoms twenty years ago. After being confined to a tilt-recline wheelchair, Dr. Wahls restored her health using a diet and lifestyle program of her own devising. Full show notes and resources at https://fumsnow.com/fums103/
Published 04/05/22
This episode is the second part of my interview with Marty Shenkman, an attorney whose private practice concentrates on estate planning. When I announced that I'd be talking to Marty, I was inundated with questions from the FUMS community. Full show notes and resources at https://fumsnow.com/fums102/
Published 03/22/22
Martin M. Shenkman (call him Marty) is an attorney whose private practice concentrates on estate planning. When his wife was diagnosed with MS, he recognized how different planning looks for people with chronic illness and it changed his whole approach to estate planning. Full show notes and resources at https://fumsnow.com/fums101/
Published 03/08/22
In this special 100th episode of the FUMS podcast, I’ll be talking a bit about why I started the podcast, my favorite episodes, as well as sharing some comments which have been sent in by some of you, the wonderful FUMS community. Full show notes and resources at https://fumsnow.com/fums100/
Published 02/22/22
I know from personal experience how frustrating it is to have to explain exactly what MS is whenever I'm speaking to a new mental health therapist. Which is why I'm delighted that Dr. Meghan Beier, a psychologist who specializes in MS, has created Find Empathy, which provides continuing education for mental health professionals on how best to serve patients who live with life-altering illnesses. Full show notes and resources at https://fumsnow.com/fums099.
Published 02/08/22
Jenny Angus was very physically active, until MS took up residence in her life. Her story is a difficult one, taking in rapidly progressing MS, research into assisted dying, and stem cell therapy. Full show notes and resources at https://fumsnow.com/fums098/
Published 01/25/22
Adam Powell was a self-proclaimed beast until 2019 when he was diagnosed with the most aggressive case of Primary Progressive MS his doctor had ever seen. But his unstoppable nature, combined with exercise and a healthy dose of FUMS attitude, has seen him develop an attitude to living his best life with Multiple Sclerosis which is inspiring. Full show notes and resources at https://fumsnow.com/fums097/
Published 01/11/22
We know women are up to three times more likely to develop MS than men, while men are more likely to have worse outcomes than women, with regards to disability accumulation. Dr. Rhonda Voskuhl, Director of the MS program at UCLA, is here to give us the latest thinking about why this might be the case. Full show notes and resources at https://fumsnow.com/fums096/
Published 12/28/21