Join us for the Season 3 premiere of The Glioblastoma AKA GBM Podcast, where we delve into the heart and mind of multi-platinum singer-songwriter Mike Posner. In this deeply personal episode, Mike shares his journey through the harrowing landscape of glioblastoma as he witnessed his father’s battle with this aggressive form of brain cancer. As we explore the layers of grief and healing, Mike opens up about how this experience has reshaped his creative process and his outlook on life. In this...

In this episode of the Glioblastoma AKA GBM Mini Series, Amber gives a recap on the inaugural Padel for Brain Cancer event, goes through life hacks as a caregiver, touches on hospice & palliative care, and unboxes her dads things from storage. Topics covered in this episode include: Hospice care & palliative care Staying organized as a caregiver End of life & food Sleep & sleep therapy Unboxing your loved ones items Thank you to our partners at xCures for supporting...

In this episode of the Glioblastoma AKA GBM Mini Series, we delve into our 2024 plans, dating, and a holiday debrief. Thank you to our partners at xCures for supporting the Mini-Series season. To learn more, visit their website at https://xcures.com/. Merch of the week: https://www.gbmresearch.org/shop/p/for-a-cure-20 "Glioblastoma AKA GBM" is more than a podcast; it's a lifeline for those touched by glioblastoma. Stay connected with "Glioblastoma AKA GBM" and the Glioblastoma Research...

In this fourth episode of the Glioblastoma AKA GBM Mini Series, we chat about major questions and topics in relation to resources for current caregivers. Topics covered in this episode include: Glioblastoma nonprofits Finding support groups Caregiver benefits & financial aid Books/apps to assist your journey The most important advice as a caregiver - according to Amber Social workers Finding therapy and support Thank you to our partners at xCures for supporting the Mini-Series...

In this third episode of the Glioblastoma AKA GBM Mini Series, we chat about all things ADVOCACY - on the caregiver AND patient side. Topics covered in this episode include: Your role as a caregiver Asking about second opinions Navigating clinical trials Questions to ask your doctor Decision making Thank you to our partners at xCures for supporting the Mini-Series season. To learn more, visit their website at https://xcures.com/. "Glioblastoma AKA GBM" is more than a podcast; it's a...

In this second episode of the Glioblastoma AKA GBM Mini Series, we chat about replying to the question "how are you doing?" Questions that came in this week included: When someone asks me how I am doing I feel like I am supposed to just smile and say “fine”. Is this ok?   How do I really tell someone how I am doing when the answer feels so dark? Am I bringing others down by being honest? What would be the best way to answer this with honesty without making them regret asking? I have no...

Embark on a journey of support and hope with the debut episode of the Glioblastoma AKA GBM Mini Series - presented by the Glioblastoma Research Organization. Join your host, Amber Barbach, as she unravels the complexities of glioblastoma (GBM) and tackles the unique challenges of managing the holidays amidst this diagnosis. In this inaugural episode, Amber candidly shares her personal experiences with her family, and offers insightful strategies for navigating the holiday season with GBM....

Welcome back to Glioblastoma AKA GBM. This 2023 holiday season we're launching our first-ever MINI SERIES which will be a 1:1 to discuss questions and topics that have been submitted through the organization. Launching on 11/30/23. To learn more about the Glioblastoma Research Organization visit us online at https://www.gbmresearch.org/.

The finale of Season 2 of Glioblastoma aka GBM is here, and to wrap up the season we'd like to welcome Elissa Barbach to the show. Elissa was a caregiver and lost her husband to glioblastoma in 2018, and has learned to rebuild her life after losing her best friend - while still being incredibly gracious, kind, loving, caring, positive - and overall, a great mom. On this episode, you'll hear us chat about: The early stages of finding out her husband had a brain tumor Being a caregiver on...

David M. Ashley, PhD, FRACP, MBBS (Hons), Director of the Preston Robert Tisch Brain Tumor Center at Duke joins us on this episode to discuss his history in neuro-oncology, innovations happening at the Brain Tumor Center, clinical trial advancements, and his past-life as a surfer. On this episode, you'll hear us chat about: - What led him to Duke - The world-renown Duke Polio clinical trial & it's comeback - His work in discovering how scientists can learn to prevent brain tumors - The...

Vidya Gopalakrishnan, Ph.D is a researcher at MD Anderson Cancer Center, an esteemed member of the Glioblastoma Research Organization Medical Advisory Board, and has a laboratory focused on research for DIPG (Diffuse Intrinsic Pontine Glioma). On this episode, you'll hear us chat about: - What sparked Vidya's interest in working on brain tumor research - Immunotherapy at MD Anderson Cancer Center - The science behind brain tumors - The difference between tumor types and tumor locations - Her...

Kate Snedeker started Gray for Glioblastoma Society at just 19 years old in an effort to create a hopeful space for all those impacted by GBM, and to help raise funding for research through community events. Kate joins us on this episode of Glioblastoma aka GBM to discuss the inspiration behind GFG, and how she's utilizing social media to make an impact. On this episode, you'll hear us chat about: - Kate's dads journey with GBM - Starting a nonprofit while still full-time in college - The...

Sadaf Chaudry lost her husband Rehan Aslam back in 2022 to glioblastoma. Sadaf joins us on this episode of Glioblastoma aka GBM to share her story, advocate for caregiver support, and share raw and honest truths about the effect glioblastoma has on families. On this episode, you'll hear us chat about: - How Sadaf and Rehan met - How it is to continue parenting after the loss of your partner - Grief in children - The legacy she wants to leave behind - The journey of learning to take over...

Amani Liaquat was just 22 years old when she was diagnosed with a glioblastoma, and passed away in 2022 from the disease. Amani spent a majority of her diagnosis focused on advocacy efforts, and raising awareness for GBM. Her parents, Yasmin and Khuram, join us on this episode to discuss Amani's journey and how her legacy lives on. On this episode, you'll hear us chat about: - Amani's story - The grief of losing a child as a parent - The difference in grief between men and women - How...

Dr. David Langer is the chair of neurosurgery at Lenox Hill Hospital and vice president of neurosurgery for Northwell Health's Western Region. His love for neurosurgery and mentorship is infectious. On this episode, you'll hear us chat about: - His love for neurosurgery - What it's like being the chair for a major institution and running the department - How Lenox Hill on Netflix & Emergency NYC came to be - His thoughts on stoicism and philosophy - & so much more TO LEARN MORE...

Greg Link is an 8+ year glioblastoma survivor and thriver. He's an advocate for talk therapy, and an advocate for multiple professional opinions. Now, he spends his time focused on his communications company and being a support system for others living with a brain tumor. On this episode, you'll hear us chat about: - His business, and what inspired him to kickstart his career - His thoughts on talk therapy - His advocacy work in helping others with a GBM diagnosis - His current day-to-day,...

Catherine Ivy is on a mission to find a cure for brain cancer, with Dr. Nader Sanai and the rest of the incredible team at the Ivy Brain Tumor Center. On this episode, you'll hear the three of us chat about: - Catherine's passion for finding a cure - What inspired Dr. Sanai to dedicate his life to research - Phase 0 clinical trials & how they work - Recharging and finding creativity in your day-to-day - What to do when you/a loved one is diagnosed - & so much more Trigger warnings...

Sit down with us this week on Glioblastoma aka GBM as we're joined by Diane Pathieu - an American television anchor who works for WLS-TV in Chicago, and her husband Nick Adamski - a glioblastoma thriver. On this episode, you'll hear us chat about: How Diane and Nick met PMA: Positive Mental Attitude Methylation profiling How hope has such a significant impact on one's life The importance of keeping a normal routine when dealing with a brain cancer diagnosis & so much more Trigger...

Dr. Henry Friedman is world renowned for his work in Neuro-oncology at Preston Robert Tisch Brain Tumor Center at Duke University. He is also a karaoke star, a massive Broadway fan, a mentor, a die-hard basketball supporter, a husband, a grandfather, and a fantastic podcast guest. On this episode, you'll hear us chat about: How Henry got involved at Duke Upcoming research advancements and clinical trials for glioblastoma The famous Polio vaccine trial at Duke making its comeback UCONN vs....

Barbie Blank Coba (aka Kelly Kelly) is best known for her WWE performances, modeling, influencing, and acting - however did you know she co-founded a nonprofit for Brain Cancer Research after losing her dad to glioblastoma? On this episode, you'll hear us chat about: How Barbie got her start in WWE The love Barbie and her dad shared, especially for wrestling The process of getting married and starting a family - without her dad by her side Her nonprofit: Cure Glioblastoma Advice she'd...

Dave Bolton remains in the top 2% of the world's survivors after given 3 months life expectancy in 2015. He is an 8+ year cancer survivor, helped heal himself with fitness and meditation, has started a charity to help others around the globe, and is an advocate for all those living with brain tumors. On this episode, you'll hear us chat about: Dave's eclectic career background How he found healing with fitness and meditation His nonprofit: Ahead of the Game How his family/home life...

Dr. Randy D'Amico, Director of the Brain and Spine Metastasis Program at Lenox Hill Hospital joins us on Episode 2 of Glioblastoma aka GBM to discuss: The ins and outs of glioblastoma Upcoming developments in neurosurgery His life as a neurosurgeon, and his past-life as a punk band member The future of brain tumors The importance of passion in the medical field & so much more Trigger warnings may include: medical procedures, surgery, and tattoos looking different as you...

To kick off the SECOND season of Glioblastoma aka GBM, we're joined by Paolo Presta as he shines a light on his experience as a caregiver when his mother was living with a glioblastoma diagnosis. On this episode, you'll hear us chat about: Paolo's experience as a caregiver Different stages of the grieving process Paolo's relationship with his mom, and the special relationship they shared Our thoughts/experiences on staying connected to those that have passed away Which our favorite...

“No matter what clinical trials are conceptualized, no matter what different projects and drugs are developed, you need research to get to a place where these things are thought up, where things are coming into existence.” During her experience with glioblastoma as a caregiver, there were many things Amber Barbach wished she had. Now, she’s giving those things to others so their experiences won’t reflect hers. In this season finale of Glioblastoma AKA GBM, Amber talks about how her family...