Meet Kam Redlawsk: Disability Advocate
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Artist, writer, and disability advocate Kam Redlawsk talks with Matthew Zachary about living with the degenerative muscle-wasting disorder GNE Myopathy and how she uses her art to visually articulate her experiences living with that rare disease.
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Published 06/22/22
Today on NORDpod, Andrew MacDowell stands in for Matthew Zachary, and he welcomes Dr. Kathleen Donohue, Director of the Division of Rare Diseases and Medical Genetics, at the FDA’s Office of New Drugs. Over 350 million people worldwide have a rare disease, yet only 10% of rare diseases have an...
Published 06/22/22
You're in for a treat on today's episode of NORDpod as I welcome chronic illness advocate Sarah Pennington to the show. Since the age of 11, Sarah has been managing a condition known as Trichotillomania, a disorder that involves recurrent, irresistible urges to pull out body hair. An estimated...
Published 06/08/22
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