Data trusts: Power to the people in the digital age
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Description
How can groups of people be empowered to share sensitive personal data such as medical records, with transparency about how they will be used? This is a question of particular relevance during the Covid-19 pandemic, when scientific research into the disease can greatly benefit from data collection at scale. In this episode, we're talking to Sylvie Delacroix, Turing Fellow and Professor in Law and Ethics at Birmingham Law School (University of Birmingham) about the concept of data trusts and how they enable the sharing and safeguarding of data. https://datatrusts.uk/
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