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Syngap Research Fund, 501(c)(3)
SynGAP10 weekly 10 minute updates on SYNGAP1
Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
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Ratings & Reviews
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5.0 stars from 81 ratings
This is quality
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“So much passion. Great resource.”
Lakshmi Lanka Ma via Apple Podcasts ·
United States of America ·
11/06/23
Amazing podcast for families
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“If you have a loved one with syngap1 you need to listen to this every week.”
fran chick ita via Apple Podcasts ·
United States of America ·
11/06/23
Passion and Compassion!
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“Every episode is full of the latest news, important studies, exciting events, incredible volunteers, and of course wonderful Warriors. I look forward to every episode!”
SYNGAP1 Bapa via Apple Podcasts ·
United States of America ·
10/20/23
Recent Episodes
SRF is a “Get-to…” not a “Have-to..” Do something & Go big. #S10e139
Talking with John Get vs Have (https://www.youtube.com/watch?v=J5oBo9zcRUE)SRF is the same:- Raise Funds to Change the Future- Volunteer, contribute to a larger effort- Connect with other families- Share our experience to...
Published 04/23/24
TOGETHER WE ARE STRONGER
- 1,400 strong, thank you Jess & team. https://curesyngap1.org/blog/syngap1-census-2024-update-61-in-q1-2024-total-1400/
- Stoke webinar: one of the most important considerations for deciding which disease to work on was, “…how strong is the patient advocacy...
Published 04/04/24
Published 04/04/24
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