Reviews
☆
☆
☆
☆
☆
“So much passion. Great resource.”
Lakshmi Lanka Ma via Apple Podcasts ·
United States of America ·
11/06/23
☆
☆
☆
☆
☆
“If you have a loved one with syngap1 you need to listen to this every week.”
fran chick ita via Apple Podcasts ·
United States of America ·
11/06/23
☆
☆
☆
☆
☆
“Every episode is full of the latest news, important studies, exciting events, incredible volunteers, and of course wonderful Warriors. I look forward to every episode!”
SYNGAP1 Bapa via Apple Podcasts ·
United States of America ·
10/20/23
☆
☆
☆
☆
☆
“Thank you for continuing to take your time in keeping our community connected and engaged. 💚💙💜”
SYNGAP1 Mom via Apple Podcasts ·
United States of America ·
09/19/23
☆
☆
☆
☆
☆
“Mike does an excellent job keeping parents informed on all things SYNGAP1! It’s a weekly listen for sure, you don’t want to miss!”
Southerngal7463 via Apple Podcasts ·
United States of America ·
09/18/23
☆
☆
☆
☆
☆
“The single best way to stay up-to-date on all things Syngap1 related! From special events/fundraisers to new studies! Always entertaining and helpful!”
Cbaysden via Apple Podcasts ·
United States of America ·
09/18/23
☆
☆
☆
☆
☆
“Thank you for this podcast.”
Super Desi Girl via Apple Podcasts ·
United States of America ·
04/08/23
☆
☆
☆
☆
☆
“So fun to follow Mike’s journey with SYNGAP1.”
FOXG1 Mom via Apple Podcasts ·
United States of America ·
06/29/22
☆
☆
☆
☆
☆
“This is such a valuable service to the rare disease community!”
googlegirl via Apple Podcasts ·
United States of America ·
06/29/22
☆
☆
☆
☆
☆
“Mike is a trailblazer! His energy and commitment are unmatched! This is an amazing way for everyone to keep up with the incredible work being done at SRF! I believe they are changing the landscape of rare!”
jls ocnds via Apple Podcasts ·
United States of America ·
04/23/22
☆
☆
☆
☆
☆
“Wonderful, inspiring, and groundbreaking research! An important service for all families with Syngap1!”
OSK2 via Apple Podcasts ·
United States of America ·
10/09/21
“You will be hard pressed to find someone more passionate about helping families living with Syngap1 than Mike Graglia. When he and his wife co-founded Syngap Research Fund, they promised Collaboration, Transparency, and Urgency, and there’s not a day that has gone by since when they haven’t...”Read full review »
ashline02 via Apple Podcasts ·
United States of America ·
07/29/21
☆
☆
☆
☆
☆
“Great weekly review of all things Syngap. Thank you!”
kasignete via Apple Podcasts ·
Great Britain ·
06/28/21
☆
☆
☆
☆
☆
“This is an awesome podcast that keeps the syngap community as well as everyone else up to date with the latest and greatest news from the wonderful Syngap Research Fund! For someone who is super busy at all times, this quick 10 minutes is perfect for me to know everything going on with SRF and to...”Read full review »
Rachel Frayne via Apple Podcasts ·
United States of America ·
05/29/21
☆
☆
☆
☆
☆
“Informative weekly podcast from Syngap Research Fund co-founder. Gives one hope. Take a listen!”
Lowojan via Apple Podcasts ·
United States of America ·
05/22/21
☆
☆
☆
☆
☆
“Extraordinarily insightful, informative, helpful and hopeful podcast. This is highly relevant for anyone who has a loved one living with SynGAP or has a loved one with a rare disease. It is also highly relevant for anyone seeking a paradigm of how to effectively support and advocate for...”Read full review »
William S - '16 via Apple Podcasts ·
United States of America ·
05/14/21
☆
☆
☆
☆
☆
“I'd recommend this to anyone interested in rare diseases and genetics. Great information from a wonderful organization!”Read full review »
Brittan H via Apple Podcasts ·
United States of America ·
04/28/21
☆
☆
☆
☆
☆
“Thank you, Mike and SRF super-team for these 10 minutes and all the other minutes behind these 10! You are amazing, inspiring and all info is reachable and up to date every week!”
Maarja Krais-Leosk via Apple Podcasts ·
Estonia ·
04/26/21
☆
☆
☆
☆
☆
“The uplifting, enthusiastic and inspiring Mike Graglia updates listeners about the Syngap Research Fund news in under 10 minutes. Most amazing are the updates involving Natural History Studies (Ciitizen), biotech companies and all other discussions regarding research, clinical trials, webinars,...”Read full review »
Nancy (Caren's sister) via Apple Podcasts ·
United States of America ·
04/07/21
☆
☆
☆
☆
☆
“Fantastic updates from a leader in the Syngap space. Thank you for providing relevant information to our community and for building a foundation that is truly paving the way towards Syngap therapies, increased awareness among researchers, clinicians, and the undiagnosed, as well as providing a...”Read full review »
RKONAIP via Apple Podcasts ·
United States of America ·
04/03/21
☆
☆
☆
☆
☆
“This is a very useful podcast to keep up on SRF and all the work they do to bridge the gap between families of Syngap1 patients and the work being done for our loved ones.”
ashley (tony's mom) via Apple Podcasts ·
United States of America ·
04/03/21
☆
☆
☆
☆
☆
“This is such an informative podcast!!! The information is so easily understood and each episode seems to pack a punch. Definitely worth the ten minute listen.”
Kristin Hatcher via Apple Podcasts ·
United States of America ·
04/02/21
☆
☆
☆
☆
☆
“Mike is a leader for the SynGAP community and the rare disease community at large. This podcast is time well as a resource for information, inspiration, and ideas”
GeoffRhyne via Apple Podcasts ·
United States of America ·
04/02/21
☆
☆
☆
☆
☆
“Mike, Ashley, and the rest of the parents at SRF are amazing people! Mike does a great job keeping everyone updated on the latest developments for SYNGAP1 research. Well worth the 10 minutes to listen and learn!”
fruitdatawiz via Apple Podcasts ·
United States of America ·
04/02/21
☆
☆
☆
☆
☆
“Gracias Mike y SRF por mantenernos informados, por este excelente resumen semanal de 10 minutos y brindarnos tanta esperanza para nuestros hijos.”
mamasyngaplatina via Apple Podcasts ·
United States of America ·
03/30/21
☆
☆
☆
☆
☆
“Worth 10 minutes of your time to hear all that is going on with SRF. Look forward to it each week!”
itsjenla via Apple Podcasts ·
United States of America ·
03/30/21
☆
☆
☆
☆
☆
“This is the place for relevant SynGAP happenings! Thanks!!!”
mom2af via Apple Podcasts ·
United States of America ·
03/30/21
☆
☆
☆
☆
☆
“This podcasts is everything for a syngap1 parent. Short, informative, hopeful. Keep it up Mike.”
zuzia. via Apple Podcasts ·
United States of America ·
03/26/21
☆
☆
☆
☆
☆
“Thanks to SRF for keeping us all in the loop about your good work.”
mobileuserwhoexpectsbetter via Apple Podcasts ·
United States of America ·
03/26/21
☆
☆
☆
☆
☆
“It takes a lot of people, a lot of expertise, to discover and create treatments for a neurological disease. Mike at SynGAP Research Fund is a catalyst for just that, connecting researchers, connecting patient families, and shining light on many of the possible pathways forward. Listen to his...”Read full review »
syngapmom via Apple Podcasts ·
United States of America ·
03/26/21
☆
☆
☆
☆
☆
“Thanks for keeping us up to date on all things SRF. It’s a quick and easy listen that boils down all the really important topics.”
AlexisG112 via Apple Podcasts ·
United States of America ·
03/26/21
☆
☆
☆
☆
☆
“Great to get this weekly update about what SRF are up to on 10 minutes! Look forward to hearing about lots of progress towards treatments.”
pavelg1 via Apple Podcasts ·
United States of America ·
03/26/21
Do you host a podcast?
Track your ranks and reviews from Spotify, Apple Podcasts and more.
See hourly chart positions and more than 30 days of history.
Get Chartable Analytics »
See hourly chart positions and more than 30 days of history.
Listen now
Links
Genres
Artwork or description wrong?
Request an update »
Updates may take a few minutes.
Do you host a podcast?
Track your ranks and reviews from Spotify, Apple Podcasts and more.
See hourly chart positions and more than 30 days of history.
Get Chartable Analytics »
See hourly chart positions and more than 30 days of history.
