Through self confidence and self acceptance Noelle didn't let EB stand in her way of attending an exchange program half way around the world. She is passionate about dance, her double major in University and spending time with her friends in the EB community. After tuning into her episode don't forget to head over to our Facebook forum where the conversation continues!  Instagram- https://www.instagram.com/noelle_hermes/ TikTok- https://www.tiktok.com/@noellehermes?refer=embed ---...

Sarah uses her EB as a motivator to propel her forward rather than hold her back. Creating EB-friendly products grew into her passion and business creating safe, vegan, ethically sourced, handmade skin care products. www.pinkposhfox.com IG: https://www.instagram.com/pinkposhfox/ FB: https://www.facebook.com/PinkPoshFox/ TikTok: https://www.tiktok.com/@pinkposhfox  --- Send in a voice message: https://anchor.fm/miathrives/message

Amy is a UK-based mama, wife, advocate, and pilates enthusiast with an extremely positive outlook on life. Tune in to this episode where she shares her journey with pregnancy, breastfeeding, and life post-partum. Amy chooses to focus on the aspects of motherhood she can do like reading to her son daily instead of dwelling on some physical aspects that are out of her control.  --- Send in a voice message: https://anchor.fm/miathrives/message

Moe spent the first two years of his life in the hospital because they didn't expect him to make it, not only did he make it but he is Thriving! He has a unique career giving back to the community and has evolved into being a social butterfly.  --- Send in a voice message: https://anchor.fm/miathrives/message

Vanessa has a deep love for music that has helped her cope with dressing changes and the pains of EB. She has merged that love of music with her other passions to create her dream career, despite people telling her it wasn't possible she pushed on to achieve her dreams. --- Send in a voice message: https://anchor.fm/miathrives/message

When Armando first went into foster care adoption wasn't on the table since they didn't know what his life was going to look like with EB and if he would even survive, he is not only surviving but THRIVING with a very full life including a career, family (families), girlfriend and adorable dog! Tune in to hear his amazing journey and unique story.  --- Send in a voice message: https://anchor.fm/miathrives/message

Sarah believes her gift is the ability to help others, she chats about how she has been able to accomplish this within her career and loving relationship. She is a little travel bug, cook, dog mom and so much more, you don't want to miss this fun-filled episode!  @sarahgracechunk --- Send in a voice message: https://anchor.fm/miathrives/message

Jamie joins Emily on another Episode of the MiaThrives Podcast chatting about, traveling the world with the love of her life, her unique career that lends well to EB care, and her positive attitude toward's self-love!  --- Send in a voice message: https://anchor.fm/miathrives/message

Erin shares the story of her son Felix and how in the short two months that he was physically here he made a bigger impact than some can say in an entire lifetime.  https://collective.world/my-son-was-born-with-a-rare-skin-disease-that-took-his-life-and-made-me-question-mine/?fbclid=IwAR2Kl9iGoG6xm_tcRYRnLB81jmdp8FE1J3bOYNgBUR5Qm3ZBO855rDKuWC0 --- Send in a voice message: https://anchor.fm/miathrives/message

In our first episode of Season 5 of the MiaThrives Podcast Lindays joins Melissa and Emily and shares the success of their families' event The Ride For Wrenleigh. Lindsay doesn't hold back and shares the raw emotional story of the loss of her daughter and how her family raises above the pain and sorrow and keeps Wrenleighs legacy alive.  https://marketing7630.wixsite.com/ride-for-wrenleigh --- Send in a voice message: https://anchor.fm/miathrives/message

Julia is a very busy young woman with an amazing story to share with the EB community.  Trust us you don't want to miss a chance to hear about this student and her very full life in Germany.  https://www.eb-haus.org/ --- Send in a voice message: https://anchor.fm/miathrives/message

Racquel talks about her life with EB! From growing up in Hawaii to her many creative talents and day to day life with EB this episode is like sitting down with two friends over coffee!   --- Send in a voice message: https://anchor.fm/miathrives/message

In this weeks can't miss episode we chat with Kourtney and her amazing mom Nurse Nelle to discuss their amazing connection, the business they've created and everything in between!   https://kokoandshae.com/ --- Send in a voice message: https://anchor.fm/miathrives/message

Martine joins us all the way from Norway to share her story of learning to live with her EB, and not against it! This 15 year old is figuring out so much about herself and is committed to increasing awareness about EB and the amazing people in this community.  --- Send in a voice message: https://anchor.fm/miathrives/message

Adam, a Canadian Pharmaceutical Consultant joins the MiaThives Podcast to discuss three new and exciting drugs for the EB community. EB is close to his heart because co-host Emily is his sister, tune in to this informative episode...

We are beyond thrilled to welcome Claudia to the MiaThrives Podcast!  This accomplished young woman is one of greatest advocates we have ever met and has opened up about her life with EB in so many ways and for so many years.  A real talk about struggles, family, relationships, and so very much more.   https://debraireland.org/ --- Send in a voice message: https://anchor.fm/miathrives/message

Joining us all the way from Belgium Katleen shares her story with Emily and Jill.   As a mother and a partner to individuals with EB Katleen is so open and honest. You don't want to miss this episode!  --- Send in a voice message: https://anchor.fm/miathrives/message

Mary is such an amazing and accomplished young woman who shares her story with our listeners.  New jobs, new adventures and a connection to Selena Gomez are just a few of the topics covered in this episode that you do not want to miss!  Mary's Kaleidoscope Story Mary's EB Research Partnership debut  --- Send in a voice message: https://anchor.fm/miathrives/message

Alex takes a huge leap into joining the EB community by sharing his story.  He speaks with such honesty about the ups and downs of having EB and how it impacts his very full life.   Check out Alex on YouTube and Twitch.  https://www.youtube.com/channel/UCehGojRE8X-DXzOoX0qfEgw https://www.twitch.tv/mrdoudrocks --- Send in a voice message: https://anchor.fm/miathrives/message

Through smiles and tears Julia shares the story of her adored brother and how their families experience with EB has helped her find her purpose and passion.  https://www.instagram.com/yogijewels/ https://miathrives.org/eb-hacks-yoga-class-collaboration-with-julia/ --- Send in a voice message: https://anchor.fm/miathrives/message

Please join Emily and Jill as they finally get the chance to speak with Sandy about growing up with EB, pregnancy, careers, role models and learning more about EB.  As an expectant mom Sandy is incredibly open and honest about her joys and her fears.  You truly do not want to miss this warm, engaging woman and her amazing story!  https://www.instagram.com/sandrakarenhines/ --- Send in a voice message: https://anchor.fm/miathrives/message

We are so excited to welcome Shirvani back with some very exciting updates. She is so honest and open about her fears, her joys and the ups and downs of navigating pregnancy and EB.   Check out Shirvani's YouTube Account here! https://www.patreon.com/miathrives --- Send in a voice message: https://anchor.fm/miathrives/message

Jill and Emily are thrilled to be back with Season 4 of the MiaThrives Podcast beginning next Wednesday October 27th at 11:00 during EB Awareness week! Please join us!  --- Send in a voice message: https://anchor.fm/miathrives/message

Emily and Jill spend an hour with Shirvani from South Africa. This incredibly dynamic woman, mother, wife, advocate, model and so much more is open and honest about her life with EB, becoming and being a mother, healthcare decisions and thriving in your own way.  We truly didn't want this conversation to end!  https://www.instagram.com/shirvani.naran/ https://www.facebook.com/Shirvaninaran --- Send in a voice message: https://anchor.fm/miathrives/message